Development of a Comprehensive Quality-of-Life Measure for Facial and Torso Acne

被引:18
|
作者
McLellan, Chelsea [1 ]
Frey, Marc P. [1 ]
Thiboutot, Diane [3 ]
Layton, Alison [4 ,5 ]
Chren, Mary-Margaret [6 ]
Tan, Jerry [2 ,7 ]
机构
[1] Univ Windsor, Dept Psychol, Windsor, ON, Canada
[2] Windsor Clin Res Inc, 2224 Walker Rd,Ste 300B, Windsor, ON N8W 5L7, Canada
[3] Penn State Hershey Med Ctr, Hershey, PA USA
[4] Harrogate & Dist NHS Fdn Trust Harrogate, Harrogate, England
[5] Dist NHS Fdn Trust, Harrogate, England
[6] Univ Calif San Francisco, Dept Dermatol, San Francisco, CA 94143 USA
[7] Univ Western Ontario, Dept Med, London, ON, Canada
关键词
acne; quality of life (QoL); patient-reported outcomes (PRO); CompAQ; impacts; measure development; REPORTED OUTCOME MEASURE; IMPACT SCALE ASIS; SKIN-DISEASE; DERMATOLOGY; PATIENT; INDEX; RESPONSIVENESS; QUESTIONNAIRE; INSTRUMENTS; VALIDATION;
D O I
10.1177/1203475418756379
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Background: Acne is a chronic skin disorder which generally presents in adolescence but continues into adulthood, and negatively affects both physical and psychosocial well-being. Presently, there are no validated acne-specific quality-of-life (QoL) measures that include dimensions for both facial and torso acne. Objective: The objective of this study was to develop a QoL instrument for both facial and torso acne (CompAQ) in accordance with recommended standards. Methods: A literature review and Delphi survey of patients and clinicians were used to develop the conceptual framework for outcomes perceived important to acne patients. An initial version of the measure was developed, CompAQ-v1, and pilot tested with patients via cognitive interviews. Results: The Delphi survey generated 4 domains (physical, psychological, sociological, and treatment) and 54 items. These, along with a literature review and input from clinical experts, informed the development of the CompAQ-v1. Eleven cognitive interviews were conducted, resulting in the second version of the measure, CompAQ-v2. Psychometric validation resulted in the final 20-item CompAQ measure comprising 5 domains. An abbreviated 5-item measure was also developed (CompAQ-SF). Conclusion: CompAQ and CompAQ-SF are instruments intended to evaluate QoL in patients with acne on their face or torso. The former is a 21-item QoL intended for research, while the latter is intended for clinical practice.
引用
收藏
页码:304 / 311
页数:8
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