Patient Perspectives on the Effect of the SARS-CoV-2 Pandemic on Patients With Systemic Sclerosis An International Patient Survey

被引:16
作者
Gupta, Latika [1 ]
Kharbanda, Rajat [1 ]
Agarwal, Vishwesh [2 ]
Misra, Durga Prasanna [1 ]
Agarwal, Vikas [1 ]
机构
[1] Sanjay Gandhi Postgrad Inst Med Sci, Dept Clin Immunol & Rheumatol, Raebareli Rd, Lucknow 226014, India
[2] Mahatma Gandhi Missions Med Coll, Navi Mumbai, India
关键词
coronavirus disease; COVID-19; health policy; pandemic; scleroderma;
D O I
10.1097/RHU.0000000000001681
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background The coronavirus disease (COVID-19) pandemic and its subsequent effects on health care systems have significantly impacted the management of chronic rheumatic diseases, including systemic sclerosis (SSc). Methods In this context, a 25-item anonymized e-survey was posted on the Twitter and Facebook e-groups and pages of various scleroderma organizations and patient communities to assess the problems faced by patients with SSc during the pandemic, with a focus on effects on the disease, drug procurance, continuity of medical care, and prevalent fears among patients. Results Of the 291 participants (median age of 55 [43.5-63] years, 93.8% females), limited systemic sclerosis was the most common diagnosis (42.3%). Many patients experienced problems attributable to the COVID-19 pandemic (119, 40.9%), of which 46 (38.7%) required an increase in medicines, and 12 (10.1%) of these needed hospitalizations for disease-related complications. More than one-third (36.4%) were on glucocorticoids or had underlying cardiovascular risks (39%) that would predispose them to severe COVID-19. A significant proportion (38.1%) faced hurdles in procuring medicines or experienced disruption in physiotherapy sessions (24.7%). One-quarter (24.1%) felt it was difficult to contact their specialist, whereas another 7.2% were unable to do so. Contracting COVID-19 was the most prevalent fear (71.5%), followed by infection in the family (61.9%), and a flare of the disease (45.4%). Most respondents preferred teleconsultations (55.7%) over hospital visits in the pandemic period. Conclusion The results of the patient survey suggest that the COVID-19 pandemic has affected many patients with SSc and may translate to poorer outcomes in this population in the postpandemic period.
引用
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页码:31 / 33
页数:3
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