Trust at stake: Is the "dual mission" of the US Alzheimer's Association out of balance?

被引:10
作者
Caspi, Eilon [1 ]
机构
[1] Dementia Behav Consulting LLC, 3910 E 28th St, Minneapolis, MN 55406 USA
来源
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE | 2019年 / 18卷 / 05期
关键词
Alzheimer's disease; biomedical research; cure; ethics in research; psychosocial; BIOMEDICALIZATION; DISEASE;
D O I
10.1177/1471301217719789
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
The official vision of the U.S. Alzheimer's Association is "A world without Alzheimer's disease." The "dual mission" of the organization is "to eliminate Alzheimer's disease through the advancement of research and to enhance care and support for individuals, their families and caregivers." Using numerous reports from leading researchers and practitioners, a case is made by which the "dual mission" is grossly unbalanced with predominant focus on biomedical research aimed at curing the disease compared to research and practices focused on the psycho-social impacts of and adaptations to living with it. These experts discuss the likelihood of curing the disease, the complexity of realizing this goal, and the urgent need to "bring back the social and psychological aspects" of living with dementia to center stage. The moral responsibility to balancing the "dual mission" in accordance with the original motivation of the grassroots organizations who formed the association in 1980 is discussed.
引用
收藏
页码:1629 / 1650
页数:22
相关论文
共 39 条
[1]   The NIA mission and beyond: Context of aging-related social impact [J].
Adelman, RC .
GERONTOLOGIST, 1999, 39 (04) :392-396
[2]  
Baltes P.B., 1990, Successful aging. Perspectives from the behavioral sciences, P1, DOI [10.1017/CBO9780511665684.003, DOI 10.1017/CBO9780511665684.003]
[3]   STUDYING DISRUPTIVE VOCALIZATION AND CONTEXTUAL FACTORS IN THE NURSING-HOME USING COMPUTER-ASSISTED REAL-TIME OBSERVATION [J].
BURGIO, LD ;
SCILLEY, K ;
HARDIN, JM ;
JANOSKY, J ;
BONINO, P ;
SLATER, SC ;
ENGBERG, R .
JOURNALS OF GERONTOLOGY, 1994, 49 (05) :P230-P239
[4]   Is the National Institute on Aging mission out of balance? [J].
Butler, RN .
GERONTOLOGIST, 1999, 39 (04) :389-391
[5]  
Campbell S, 2016, RAISE FLOOR QUALITY
[6]  
ChangingAging, 2017, EV MIN COUNTS CALL A
[7]  
Cohen-Mansfield J, 1992, J Appl Gerontol, V11, P111, DOI 10.1177/073346489201100109
[8]  
Dementia Action Alliance, 2014, DEM SOC CHALL
[9]  
DeVere R, 2012, ALZHEIMERS SPEAKS RA
[10]  
Disease International, 2015, WORLD ALZHEIMERS REP