Measuring Advance Care Planning: Optimizing the Advance Care Planning Engagement Survey

被引:149
作者
Sudore, Rebecca L. [1 ,2 ]
Heyland, Daren K. [3 ,4 ]
Barnes, Deborah E. [2 ,5 ,6 ,7 ]
Howard, Michelle [8 ]
Fassbender, Konrad [9 ]
Robinson, Carole A. [10 ]
Boscardin, John [1 ,6 ]
You, John J. [11 ,12 ]
机构
[1] Univ Calif San Francisco, Dept Med, Div Geriatr, San Francisco, CA USA
[2] San Francisco VA Med Ctr, San Francisco, CA USA
[3] Kingston Gen Hosp, Clin Evaluat Res Unit, Kingston, ON, Canada
[4] Queens Univ, Dept Publ Hlth, Kingston, ON, Canada
[5] Univ Calif San Francisco, Dept Psychiat, San Francisco, CA USA
[6] Univ Calif San Francisco, Dept Epidemiol & Biostat, San Francisco, CA 94143 USA
[7] UCSF, Tideswell, San Francisco, CA USA
[8] McMaster Univ, Dept Family Med, Hamilton, ON, Canada
[9] Covenant Hlth Palliat Inst, Edmonton, AB, Canada
[10] Univ British Columbia, Sch Nursing, Kelowna, BC, Canada
[11] McMaster Univ, Dept Clin Epidemiol & Biostat, Hamilton, ON, Canada
[12] McMaster Univ, Dept Med, Hamilton, ON, Canada
关键词
Advance care planning; surveys and questionnaires; psychometrics; DIVERSE OLDER-ADULTS; DECISION-MAKING; PREPARE; END;
D O I
10.1016/j.jpainsymman.2016.10.367
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. A validated 82-item Advance Care Planning (ACP) Engagement Survey measures a broad range of behaviors. However, concise surveys are needed. Objectives. The objective of this study was to validate shorter versions of the survey. Methods. The survey included 57 process (e.g., readiness) and 25 action items (e.g., discussions). For item reduction, we systematically eliminated questions based on face validity, item nonresponse, redundancy, ceiling effects, and factor analysis. We assessed internal consistency (Cronbach's alpha) and construct validity with cross-sectional correlations and the ability of the progressively shorter survey versions to detect change one week after exposure to an ACP intervention (Pearson correlation coefficients). Results. Five hundred one participants (four Canadian and three US sites) were included in item reduction (mean age 69 years [+/- 10], 41% nonwhite). Because of high correlations between readiness and action items, all action items were removed. Because of high correlations and ceiling effects, two process items were removed. Successive factor analysis then created 55-, 34-, 15-, nine-, and four-item versions; 664 participants (from three US ACP clinical trials) were included in validity analysis (age 65 years [+/- 8], 72% nonwhite, 34% Spanish speaking). Cronbach's alphas were high for all versions (four items 0.84e55 items 0.97). Compared with the original survey, cross-sectional correlations were high (four items 0.85; 55 items 0.97) as were delta correlations (four items 0.68; 55 items 0.93). Conclusion. Shorter versions of the ACP Engagement Survey are valid, internally consistent, and able to detect change across a broad range of ACP behaviors for English and Spanish speakers. Shorter ACP surveys can efficiently measure broad ACP behaviors in research and clinical settings. Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine.
引用
收藏
页码:669 / +
页数:21
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