Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents

被引：16

作者：

Burstrom, Asa ^{[1
,4
]}

Mora, Mariela Acuna ^{[7
,11
]}

Ojmyr-Joelsson, Maria ^{[2
,5
]}

Sparud-Lundin, Carina ^{[8
,9
]}

Rydberg, Annika ^{[12
]}

Hanseus, Katarina ^{[13
]}

Frenckner, Bjorn ^{[2
,6
]}

Nisell, Margret ^{[3
,14
]}

Moons, Philip ^{[10
,11
]}

Bratt, Ewa-Lena ^{[10
,15
]}

机构：

[1] Karolinska Inst, Inst Neurobiol Care Sci & Soc NVS, Alfred Nobels Alle 23,C3, S-14183 Stockholm, Sweden

[2] Karolinska Inst, Dept Women Childrens Hlth, Stockholm, Sweden

[3] Karolinska Inst, Stockholm, Sweden

[4] Astrid Lindgren Childrens Hosp, Stockholm, Sweden

[5] Astrid Lindgren Childrens Hosp, Pediat Surg Unit, Stockholm, Sweden

[6] Astrid Lindgren Childrens Hosp, Dept Pediat Surg Unit, Stockholm, Sweden

[7] Univ Gothenburg, Gothenburg, Sweden

[8] Univ Gothenburg, Caring Sci, Sahlgrenska Acad, Gothenburg, Sweden

[9] Univ Gothenburg, Inst Hlth & Care Sci, Sahlgrenska Acad, Gothenburg, Sweden

[10] Univ Gothenburg, Inst Hlth & Care Sci, Gothenburg, Sweden

[11] Katholieke Univ Leuven, Leuven, Belgium

[12] Umea Univ, Umea, Sweden

[13] Skane Univ Hosp, Lund, Sweden

[14] Red Cross Univ Coll, Stockholm, Sweden

[15] Queen Silvia Childrens Hosp, Gothenburg, Sweden

来源：

JOURNAL OF FAMILY NURSING | 2019年 / 25卷 / 03期

基金：

瑞典研究理事会;

关键词：

adolescents; congenital heart disease; readiness for transition; parents; QUALITY-OF-LIFE; YOUNG-ADULTS; HEALTH-CARE; PSYCHOMETRIC PROPERTIES; POSITION PAPER; TASK-FORCE; SELF-CARE; SOCIETY; CHILD; SCALE;

D O I：

10.1177/1074840719864255

中图分类号：

D669 [社会生活与社会问题]; C913 [社会生活与社会问题];

学科分类号：

1204 ;

摘要：

Transfer to adult care for adolescents with chronic conditions ought to be determined by transition readiness. The aims of this study were (a) to describe the level of readiness for transition in adolescents with congenital heart disease, (b) to compare adolescents' assessment of transition readiness with their parents' assessments, and (c) to study potential correlates of transition readiness. A total of 157 triads of adolescents aged 14 to 18 years and their parents completed the Readiness for Transition Questionnaire. Adolescents scored higher on overall readiness than their parents. Multivariable analyses revealed that higher levels of adolescents' overall readiness were associated with a less threatening view of the illness, a higher level of empowerment, and with higher mothers' and fathers' overall readiness scores. Adolescents' responsibility scores were positively associated with age and parental adolescent responsibility scores. Parental involvement scores were negatively associated with adolescents' age and positively with the mothers' parental involvement scores. By using a triadic evaluation, the results of the present study significantly extend what is currently known about this population.

引用

页码：447 / 468

页数：22

共 45 条

[1] Behind the scenes: the changing roles of parents in the transition from child to adult diabetes service [J].