Parent focused interventions for older children or adults with ASD and parent wellbeing outcomes: A systematic review with meta-analysis

被引:27
作者
Rutherford, Marion [1 ]
Singh-Roy, Anusua [1 ]
Rush, Robert [1 ]
McCartney, Deborah [1 ]
O'Hare, Anne [1 ]
Forsyth, Kirsty [1 ]
机构
[1] Queen Margaret Univ, Univ Dr, Musselburgh EH21 6UU, Scotland
关键词
Autism spectrum disorder; Wellbeing; Quality of life; Parent stress; Intervention; AUTISM SPECTRUM DISORDERS; QUALITY-OF-LIFE; RANDOMIZED CONTROLLED-TRIAL; STONES TRIPLE P; YOUNG-CHILDREN; PROGRAM; MINDFULNESS; FAMILIES; MOTHERS; HEALTH;
D O I
10.1016/j.rasd.2019.101450
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background: There is a need for better evidence in relation to parent-focussed interventions for older children (over 7 years) and adults, which are recommended in clinical guidelines. Method: We conducted a systematic review of studies published between 2006 and 2016 investigating wellbeing outcomes of ASD parent focussed interventions via a search of electronic databases including MEDLINE, PsychINFO, CINAHL and the Cochrane database. Results: We screened 9605 titles, 57 full text articles and abstracts were read. Two were systematic reviews and 22 experimental intervention studies were included for review. Of these, five were Randomised Controlled Trials, three Controlled Trials and 14 Cohort studies. Interventions were: Parent education and training (n = 12); Mindfulness or relaxation training (n = 6), Parent support groups (n = 2) and Multicomponent interventions (n = 2). Studies reported five wellbeing outcomes: quality of life, parent stress, self-efficacy, parenting style and satisfaction. Separate meta-analyses compared each outcome, to test and estimate the summary effect shared by studies reporting each intervention. Statistically significant outcomes were obtained for reducing parent stress via mindfulness training and for improving parent style and satisfaction, through parent education. Conclusions: Analyses of a small number of studies indicate that parent focussed interventions could be effective in improving parent wellbeing, however further research is needed to determine optimal parent intervention models.
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页数:17
相关论文
共 73 条
[1]  
[Anonymous], SUMM SEL NEW EV REL
[2]  
[Anonymous], 2012, National clinical guideline no 142
[3]  
[Anonymous], 2016, HEALTHC IMPR SCOTL H
[4]  
[Anonymous], EUR FOR POP AG RES
[5]   Effects of a Father-Based In-Home Intervention on Perceived Stress and Family Dynamics in Parents of Children With Autism [J].
Bendixen, Roxanna M. ;
Elder, Jennifer H. ;
Donaldson, Susan ;
Kairalla, John A. ;
Valcante, Greg ;
Ferdig, Richard E. .
AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2011, 65 (06) :679-687
[6]   Mindfulness Training Effects for Parents and Educators of Children With Special Needs [J].
Benn, Rita ;
Akiva, Tom ;
Arel, Sari ;
Roeser, Robert W. .
DEVELOPMENTAL PSYCHOLOGY, 2012, 48 (05) :1476-1487
[7]   Longitudinal effects of educational involvement on parent and family functioning among mothers of children with ASD [J].
Benson, Paul R. .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2015, 11 :42-55
[8]   Family Quality of Life During the Transition to Adulthood for Individuals With Intellectual Disability and/or Autism Spectrum Disorders [J].
Boehm, Thomas L. ;
Carter, Erik W. ;
Taylor, Julie Lounds .
AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2015, 120 (05) :395-411
[9]   Mindfulness, Stress and Well-Being in Parents of Children with Autism Spectrum Disorder: A Systematic Review [J].
Cachia, Renee L. ;
Anderson, Angelika ;
Moore, Dennis W. .
JOURNAL OF CHILD AND FAMILY STUDIES, 2016, 25 (01) :1-14
[10]   A Parent Education Program for Parents of Chinese American Children With Autism Spectrum Disorders (ASDs) A Pilot Study [J].
Chiang, Hsu-Min .
FOCUS ON AUTISM AND OTHER DEVELOPMENTAL DISABILITIES, 2014, 29 (02) :88-94