The "work'' of women when considering and using interventions to reduce mother-to-child transmission (MTCT) of HIV

被引:13
作者
Giles, Michelle L. [1 ,2 ,3 ]
Hellard, Margaret E. [1 ,3 ]
Lewin, Sharon R. [1 ,2 ]
O'Brien, Mary L. [4 ]
机构
[1] Monash Univ, Alfred Hosp, Infect Dis Unit, Melbourne, Vic 3181, Australia
[2] Monash Univ, Dept Med, Melbourne, Vic 3004, Australia
[3] Burnet Inst, Melbourne, Vic, Australia
[4] Univ Melbourne, Melbourne Grad Sch Educ, Melbourne, Vic, Australia
来源
AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV | 2009年 / 21卷 / 10期
基金
英国医学研究理事会; 澳大利亚研究理事会;
关键词
HIV; pregnancy; antiretroviral therapy; cesarean section; breast feeding; POSITIVE WOMEN; DECISION-MAKING; EXPERIENCES; DISCLOSURE;
D O I
10.1080/09540120902803166
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
This paper explores HIV-infected women's experiences of considering and using recommended interventions during pregnancy and postpartum to reduce mother-to-child transmission of HIV. Data were collected from 45 HIV-infected women aged 18 - 44 years living in Melbourne, Australia. A semi-structured interview was used to collect qualitative information on women's reproductive experience and intentions. The 15 women who had their children after their HIV diagnosis engaged in significant work including surveillance and safety work to minimise stigma and infection, information work to inform decisions and actions, accounting work to calculate risk and benefit, hope and worry work concerning a child's infection status and impact of interventions, work to redefine an acceptable maternal identity, work to prepare an alternative story to counter the disclosure effect of the intervention and emotional work to reconcile guilt when considering these interventions. This study provides a framework to help clinicians understand the real and on-going "work'' that women engage in when they are considering interventions recommended by their physicians to reduce transmission of HIV. Even in circumstances where access to and acceptance of interventions are high, women continue to engage in this work even after they have a made a decision about a particular intervention.
引用
收藏
页码:1230 / 1237
页数:8
相关论文
共 17 条
[1]   Acceptability, feasibility and affordability of infant feeding options for HIV-infected women: a qualitative study in south-west Nigeria [J].
Abiona, Titilayo C. ;
Onayade, Adedeji A. ;
Ijadunola, Kayode T. ;
Obiajunwa, Perpetua O. ;
Aina, Abisi I. ;
Thairu, Lucy N. .
MATERNAL AND CHILD NUTRITION, 2006, 2 (03) :135-144
[2]   Disclosure of HIV among black African men and women attending a London HIV clinic [J].
Calin, T. ;
Green, J. ;
Hetherton, J. ;
Brook, G. .
AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV, 2007, 19 (03) :385-391
[3]  
CASTRO A, 2007, AIDS S, V21, P49
[4]   Routine antenatal HIV testing: the responses and perceptions of pregnant women and the viability of informed consent. A qualitative study [J].
de Zulueta, Paquita ;
Boulton, Mary .
JOURNAL OF MEDICAL ETHICS, 2007, 33 (06) :329-336
[5]   A longitudinal qualitative study of infant-feeding decision making and practices among HIV-Positive women in South Africa [J].
Doherty, Tanya ;
Chopra, Mickey ;
Nkonki, Lungiswa ;
Jackson, Debra ;
Persson, Lars-Ake .
JOURNAL OF NUTRITION, 2006, 136 (09) :2421-2426
[6]  
Green J., 2018, Qualitative methods for health research
[7]   Double binds and the reproductive and mothering experiences of HIV-positive women [J].
Ingram, D ;
Hutchinson, SA .
QUALITATIVE HEALTH RESEARCH, 2000, 10 (01) :117-132
[8]  
Kirshenbaum SB, 2004, PERSPECT SEX REPRO H, V36, P106, DOI 10.1111/j.1931-2393.2004.tb00198.x
[9]   Intricacies and inter-relationships between HIV disclosure and HAART: a qualitative study [J].
Klitzman, RL ;
Kirshenbaum, SB ;
Dodge, B ;
Remien, RH ;
Ehrhardt, AA ;
Johnson, MO ;
Kittel, LE ;
Daya, S ;
Morin, SF ;
Kelly, J ;
Lightfoot, M ;
Rotheram-Borus, MJ .
AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV, 2004, 16 (05) :628-640
[10]   Use of interventions for reducing mother-to-child transmission of HIV in Australia [J].
McDonald, AM ;
Li, YM ;
Cruickshank, MA ;
Elliott, EJ ;
Kaldor, JM ;
Ziegler, JB .
MEDICAL JOURNAL OF AUSTRALIA, 2001, 174 (09) :449-452