Peer-to-peer connections: Perceptions of a social support app designed for young adults with cancer

被引:31
作者
Lazard, Allison J. [1 ,2 ,3 ]
Saffer, Adam J. [1 ]
Horrell, Lindsey [4 ]
Benedict, Catherine [5 ]
Love, Brad [3 ,6 ]
机构
[1] Univ N Carolina, Sch Media & Journalism, 384 Carroll Hall,CB 3365, Chapel Hill, NC 27599 USA
[2] Univ N Carolina, Lineberger Comprehens Canc Ctr, Chapel Hill, NC 27515 USA
[3] Univ Texas Austin, Ctr Hlth Commun, Austin, TX 78712 USA
[4] Univ N Carolina, Gillings Sch Global Publ Hlth, Chapel Hill, NC 27515 USA
[5] Stanford Univ, Sch Med, Stanford, CA 94305 USA
[6] Univ Texas Austin, Stan Richards Sch Advertising & Publ Relat, Austin, TX 78712 USA
关键词
cancer; eHealth; interactive design; mobile app intervention; oncology; social networking; social support; user experience; user interface; PSYCHOLOGICAL DISTRESS; PSYCHOSOCIAL SUPPORT; ADOLESCENT; ENGAGEMENT; ONLINE; NEEDS; CONNECTEDNESS; INFORMATION; CHALLENGES; SURVIVORS;
D O I
10.1002/pon.5220
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objective Social support is a critical, yet frequently unmet, need among young adults (YAs) with cancer. YAs desire age-appropriate resources to connect with peers. Peer-to-peer mobile apps are promising interventions to provide social support. Peer-to-peer apps will be more effective if development incorporates users' input for whether app designs (look and function) afford meaningful connections. Methods We interviewed 22 YAs to assess perceptions of a peer-to-peer app at a YA cancer convention in April 2017. Results Participants were an average age of 29, mostly female (77%), white (73%), and well educated (68% with 4-year college degree or higher). Most participants expressed interested in using an app to connect with YAs, but preferences varied by prevalence or rarity of one's cancer diagnosis. YAs shared trade-offs for profile anonymity versus profiles with more personal information, requests for filter options to connect for varying support needs, and desires for tailored messaging and chat room features (eg, topic-specific and search capabilities). Conclusion Findings demonstrate the promise of apps to fulfill YA cancer survivors' unmet peer support needs and provide guidance for app optimization. Clinical implications Peer-to-peer support apps should be designed so users can control their identity and customize features for meaningful connections.
引用
收藏
页码:173 / 181
页数:9
相关论文
共 38 条
[21]   Exploring Psychosocial Support Online: A Content Analysis of Messages in an Adolescent and Young Adult Cancer Community [J].
Love, Brad ;
Crook, Brittani ;
Thompson, Charee M. ;
Zaitchik, Sarah ;
Knapp, Jessica ;
LeFebvre, Leah ;
Jones, Barbara ;
Donovan-Kicken, Erin ;
Eargle, Emily ;
Rechis, Ruth .
CYBERPSYCHOLOGY BEHAVIOR AND SOCIAL NETWORKING, 2012, 15 (10) :555-559
[22]   Apps and Adolescents: A Systematic Review of Adolescents' Use of Mobile Phone and Tablet Apps That Support Personal Management of Their Chronic or Long-Term Physical Conditions [J].
Majeed-Ariss, Rabiya ;
Baildam, Eileen ;
Campbell, Malcolm ;
Chieng, Alice ;
Fallon, Debbie ;
Hall, Andrew ;
McDonagh, Janet E. ;
Stones, Simon R. ;
Thomson, Wendy ;
Swallow, Veronica .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2015, 17 (12)
[23]   How does online social networking enhance life satisfaction? The relationships among online supportive interaction, affect, perceived social support, sense of community, and life satisfaction [J].
Oh, Hyun Jung ;
Ozkaya, Elif ;
LaRose, Robert .
COMPUTERS IN HUMAN BEHAVIOR, 2014, 30 :69-78
[24]   Benefits and challenges experienced by professional facilitators of online support groups for cancer survivors [J].
Owen, Jason E. ;
Bantum, Erin O'Carroll ;
Golant, Mitch .
PSYCHO-ONCOLOGY, 2009, 18 (02) :144-155
[25]   Behavioral Functionality of Mobile Apps in Health Interventions: A Systematic Review of the Literature [J].
Payne, Hannah E. ;
Lister, Cameron ;
West, Joshua H. ;
Bernhardt, Jay M. .
JMIR MHEALTH AND UHEALTH, 2015, 3 (01)
[26]   Social Media and the Adolescent and Young Adult (AYA) Patient with Cancer [J].
Perales, Miguel-Angel ;
Drake, Emily K. ;
Pemmaraju, Naveen ;
Wood, William A. .
CURRENT HEMATOLOGIC MALIGNANCY REPORTS, 2016, 11 (06) :449-455
[27]  
Pew Research Center , 2019, AUD PODC FACT SHEET
[28]   Intervention Format and Delivery Preferences Among Young Adult Cancer Survivors [J].
Rabin, Carolyn ;
Simpson, Norah ;
Morrow, Kathleen ;
Pinto, Bernardine .
INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, 2013, 20 (02) :304-310
[29]   Weak ties and the core discussion network: Why people regularly discuss important matters with unimportant alters [J].
Small, Mario Luis .
SOCIAL NETWORKS, 2013, 35 (03) :470-483
[30]   Mobile Telephone Text Messaging for Medication Adherence in Chronic Disease A Meta-analysis [J].
Thakkar, Jay ;
Kurup, Rahul ;
Laba, Tracey-Lea ;
Santo, Karla ;
Thiagalingam, Aravinda ;
Rodgers, Anthony ;
Woodward, Mark ;
Redfern, Julie ;
Chow, Clara K. .
JAMA INTERNAL MEDICINE, 2016, 176 (03) :340-349