Persons with dementia as internet users: what are their needs? A qualitative study

Aims and objectives The aim of this study was to identify the needs and expectations of persons with dementia regarding dementia-related information on the internet concerning content, presentation, navigation, language and design. Background Research on internet-related needs of persons with dementia is lacking. However, the importance of the internet as a source of health information is increasing. To improve health literacy and to ensure participation in therapy decisions, target group-specific health information is necessary, especially for persons with chronic conditions like dementia. Design We conducted a qualitative interview study between April 2019 and April 2020 in the German-speaking part of Switzerland. To report the study, we used the COREQ checklist. Methods We analysed the interview data using content analysis according to Mayring. Results Four interviews with five persons with dementia took place. We identified two main themes: (1) 'use of media and changing needs' and (2) 'information about dementia on the internet'. The first theme is related to changing user habits due to progressing dementia. The second theme is focussed on requirements concerning design and content. Critical reception and assessment of internet-based information are also addressed. Conclusions Information should be adapted to the course of disease. Opportunities and positive aspects should also be mentioned. The presentation should be well-structured. Health professionals might support persons with dementia in searching and interpreting internet-based information. Relevance to clinical practice Website operators should consider specific needs of persons with dementia regarding design and content. Involving persons with dementia in the development of website content and design could be an opportunity for better meeting their needs.