Training in pediatric palliative care in Italy: still much to do

被引:11
作者
Benini, Franca [1 ]
Cauzzo, Chiara [1 ]
Congedi, Sabrina [1 ]
Da Dalt, Liviana [2 ]
Cogo, Paola [3 ]
Biscaglia, Lilia [4 ]
Giacomelli, Luca [5 ,6 ]
机构
[1] Univ Padua, Dipartimento Salute Donna & Bambino, Cure Palliat Pediat, Terapia Dolore, Via Giustiniani 3, I-35128 Padua, Italy
[2] Univ Padua, Dipartimento Salute Donna & Bambino, Dipartimento Pediat Urgenza, Padua, Italy
[3] Univ Udine, Dipartimento Med, Sez Pediat, Udine, Italy
[4] Cooperaz Odontoiatr Int COI NGO, Turin, Italy
[5] Polistudium SRL, Milan, Italy
[6] Univ Genoa, Dipartimento Sci Chirurg & Diagnost Integrata, Genoa, Italy
来源
ANNALI DELL ISTITUTO SUPERIORE DI SANITA | 2019年 / 55卷 / 03期
关键词
education; pediatric palliative care; end-of-life; postgraduate; OF-LIFE CARE; RESIDENTS; EDUCATION; CHILDREN; NEEDS; EXPERIENCES; FAMILIES; DIE;
D O I
10.4415/ANN_19_03_07
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Aim. This survey investigated the availability of training programs in pediatric palliative care (PPC) for Italian postgraduates specializing in pediatric medicine. Methods. Two questionnaires were developed: (i) a questionnaire addressed to the Directors of Italian postgraduate pediatric medicine programs (n = 37); and (ii) a survey to the postgraduate students in pediatric medicine at the University Hospitals of Padua and Udine (n = 127). Results. 14 directors participated (response rate: 37.8%). In 85.7% of cases (n = 12), lectures on PPC were offered, for a supposed maximum of 90 minutes/year. 116 students responded (response rate: 91%): they stated that, approximately 40 min/year of training on PPC was provided. In total, 37% of responders stated they attended a PPC Service during their training. The majority of responders (68.1%, n = 79) did not feel ready to care for a pediatric patient with life-limiting disease. Conclusions. Although PPC is well-recognized as part of a pediatrician's training, it receives poor attention.
引用
收藏
页码:240 / 245
页数:6
相关论文
共 50 条
[21]   Pediatric Project ECHO(R): A Virtual Community of Practice to Improve Palliative Care Knowledge and Self-Efficacy among Interprofessional Health Care Providers [J].
Lalloo, Chitra ;
Osei-Twum, Jo-Ann ;
Rapoport, Adam ;
Vadeboncoeur, Christina ;
Weingarten, Kevin ;
van Zanten, Stephanie Veldhuijzen ;
Widger, Kimberley ;
Stinson, Jennifer .
JOURNAL OF PALLIATIVE MEDICINE, 2021, 24 (07) :1036-1044
[22]   What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting? [J].
Boyden, Jackelyn Y. ;
Ersek, Mary ;
Deatrick, Janet A. ;
Widger, Kimberley ;
LaRagione, Gwenn ;
Lord, Blyth ;
Feudtner, Chris .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2021, 61 (01) :12-23
[23]   An Assessment of the Current State of Palliative Care Education in Pediatric Hematology/Oncology Fellowship Training [J].
Roth, Michael ;
Wang, Dan ;
Kim, Mimi ;
Moody, Karen .
PEDIATRIC BLOOD & CANCER, 2009, 53 (04) :647-651
[24]   Training neonatal staff for the future in neonatal palliative care [J].
Mancini, Alexandra ;
Kelly, Paula ;
Langner, Myra Bluebond .
SEMINARS IN FETAL & NEONATAL MEDICINE, 2013, 18 (02) :111-115
[25]   Effectiveness of Pediatric Palliative Care Education on Pediatric Clinicians [J].
Peng, Niang-Huei ;
Lee, Cheng-Han ;
Lee, Min-Chun ;
Huang, Li-Chi ;
Chang, Yue-Cune ;
DeSwarte-Wallace, Joetta .
WESTERN JOURNAL OF NURSING RESEARCH, 2017, 39 (12) :1624-1638
[26]   Simulation-Based Palliative Care Communication for Pediatric Critical Care Fellows [J].
Brock, Katharine E. ;
Tracewski, Meghan ;
Allen, Kristen E. ;
Klick, Jeffrey ;
Petrillo, Toni ;
Hebbar, Kiran B. .
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2019, 36 (09) :820-830
[27]   Pediatric Palliative Care in Infants and Neonates [J].
Carter, Brian S. .
CHILDREN-BASEL, 2018, 5 (02)
[28]   The Supportive Care Clinic: A Novel Model of Embedded Pediatric Palliative Oncology Care [J].
Brock, Katharine E. ;
DeGroote, Nicholas P. ;
Roche, Anna ;
Lee, Annika ;
Wasilewski, Karen .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2022, 64 (03) :287-+
[29]   In Every Detail: Spiritual Care in Pediatric Palliative Care Perceived by Healthcare Providers [J].
Cheng, Lei ;
Cai, Siyu ;
Zhou, Xuan ;
Zhai, Xiaowen .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2024, 67 (02) :167-172
[30]   The Lack of Systematic Training for Health Care Providers, A Challenge for Providing Pediatric Palliative Home Care: A Comparative Study [J].
Dorcheh, Azam Eshaghian ;
Zandi, Mitra ;
Rassouli, Maryam ;
Tahmasebi, Mamak .
INTERNATIONAL JOURNAL OF PEDIATRICS-MASHHAD, 2019, 7 (05) :9481-9496