"Being Guided": What Oncofertility Patients' Decisions Can Teach Us about the Efficacy of Autonomy, Agency, and Decision- Making Theory in the Contemporary Clinical Encounter

被引:4
作者
Paton, Alexis [1 ]
机构
[1] Univ Leicester, SAPPHIRE Grp, Social Sci Appl Hlth, Social Sci Appl Healthcare Improvement Res, Leicester, Leics, England
来源
INTERNATIONAL JOURNAL OF FEMINIST APPROACHES TO BIOETHICS | 2019年 / 12卷 / 02期
关键词
autonomy and agency; being guided; empirical ethics; patient decision-making; sociological bioethics; FERTILITY PRESERVATION; ETHICS; CANCER; GIRLS; WOMEN;
D O I
10.3138/ijfab.12.2.02
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Recent research on patient decision-making reveals a disconnect between theories of autonomy, agency, and decision-making and their practice in contemporary clinical encounters. This study examines these concepts in the context of female patients making oncofertility decisions in the United Kingdom in light of the phenomenon of "being guided." Patients experience being guided as a way to cope with, understand, and defer difficult treatment decisions. Previous discussions condemn guided decision-making, but this research suggests that patients make an informed, autonomous decision to be guided by doctors. Thus, bioethicists must consider the multifaceted ways that patients enact their autonomy in medical encounters.
引用
收藏
页码:18 / 35
页数:18
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