Multiple sclerosis care units in Latin America: Consensus recommendations about its objectives and functioning implementation

被引：5

作者：

Cristiano, Edgardo ^{[1
]}

Abad, Patricio ^{[2
,3
]}

Becker, Jefferson ^{[4
]}

Carra, Adriana ^{[5
,6
]}

Correale, Jorge ^{[7
]}

Flores, Jose ^{[8
,9
]}

Fruns, Manuel ^{[10
]}

Garcea, Orlando ^{[11
]}

Garcia Bonitto, Juan ^{[12
]}

Gracia, Fernando ^{[13
]}

Hamuy, Fernando ^{[14
,15
]}

Navas, Carlos ^{[16
]}

Patrucco, Liliana ^{[17
]}

Rivera, Victor ^{[18
]}

Velazquez, Merced ^{[19
]}

Ignacio Rojas, Juan ^{[1
,20
]}

机构：

[1] Ctr Esclerosis Multiple Buenos Aires, Buenos Aires, DF, Argentina

[2] Hosp Metropolitan Quito, Serv Neurol, Quito, Ecuador

[3] Neurol PUCE, Quito, Ecuador

[4] Pontifical Catholic Univ Rio Grande do Sul PUCRS, Brain Inst Rio Grande do Sul, Porto Alegre, RS, Brazil

[5] MS Sect Hosp Britan Buenos Aires, Buenos Aires, DF, Argentina

[6] Neurociencias Fdn Favaloro INECO, Buenos Aires, DF, Argentina

[7] Dept Neurol, Fleni, Argentina

[8] Inst Nacl Neurol & Neurocirug, Ciudad De Mexico, Mexico

[9] Ctr Neurol ABC Santa Fe, Ciudad De Mexico, Mexico

[10] Clin Las Condes, Santiago, Chile

[11] Hosp Ramos Mejia, Clin Esclerosis Multiple, Buenos Aires, DF, Argentina

[12] Sistema Nacl Salud Colombian, Clin Marly Bogota, Bogota, Colombia

[13] Univ Interamer Panama, Serv Neurol Hosp Santo Tomas, Clin Esclerosis Multiple, Panama City, Panama

[14] Hosp IMT, Dept Neurol, Asuncion, Paraguay

[15] Dept Neurol Diagnost Codas Thompson, Asuncion, Paraguay

[16] Clin Univ Colombia, Clin Enfermedad Desmielinizante, Bogota, Colombia

[17] Hosp Italian Buenos Aires, Serv Neurol, Buenos Aires, DF, Argentina

[18] Baylor Coll Med, Houston, TX 77030 USA

[19] Unidad Invest Salud Chihuahua, Chihuahua, Mexico

[20] Hosp Univ CEMIC, Serv Neurol, Buenos Aires, DF, Argentina

来源：

JOURNAL OF THE NEUROLOGICAL SCIENCES | 2021年 / 429卷

关键词：

Multiple sclerosis; Care units; Diagnosis; Treatment; Latin America; CLINICALLY ISOLATED SYNDROMES; COGNITIVE IMPAIRMENT; TREATMENT RESPONSE; NATURAL-HISTORY; BUENOS-AIRES; DISABILITY; LESIONS; MRI; THERAPY; COMORBIDITY;

D O I：

10.1016/j.jns.2021.118072

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Objective: Currently, there are several reasons to promote worldwide the concept of multiple sclerosis care units (MSCU) for a better management of affected patients. Ideally, the MSCU should have some human and technical resources that distinguish and improve the care of affected patients; however, local, and regional aspects should be considered when recommending how these units should operate. The objective of these consensus recommendations was to review how MSCU should work in Latin America to improve long-term outcomes in MS patients. Methods: A panel of neurology experts from Latin America dedicated to the diagnosis and care of MS patients gathered virtually during 2019 and 2020 to carry out a consensus recommendation about objectives and functioning implementation of MSCU in Latin America. To achieve consensus, the methodology of "formal consensusRAND/UCLA method" was used. Results: Recommendations focused on the objectives, human and technical resources, and the general functioning that MSCU should have in Latin America. Conclusions: The recommendations of these consensus guidelines attempt to optimize the health care and management of MS patients by setting how MSCU should work in our region.

引用

页数：10

共 76 条

[1] Recommendations for the establishment of primary stroke centers [J].

Alberts, MJ ;

Hademenos, G ;

Latchaw, RE ;

Jagoda, A ;

Marler, JR ;

Mayberg, MR ;

Starke, RD ;

Todd, HW ;

Viste, KM ;

Girgus, M ;

Shephard, T ;

Emr, M ;

Shwayder, P ;

Walker, MD .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2000, 283 (23) :3102-3109

[2] Tools for measuring patient safety in primary care settings using the RAND/UCLA appropriateness method [J].

Bell, Brian G. ;

Spencer, Rachel ;

Avery, Anthony J. ;

Campbell, Stephen M. .

BMC FAMILY PRACTICE, 2014, 15

[3]

Berkovich Regina Radner, 2016, Continuum (Minneap Minn), V22, P799, DOI 10.1212/CON.0000000000000330

[4] All relapsing multiple sclerosis patients should be managed at a specialist clinic - YES [J].

Brownlee, Wallace J. ;

Ciccarelli, Olga .

MULTIPLE SCLEROSIS JOURNAL, 2016, 22 (07) :873-875

[5] Access and unmet needs to multiple sclerosis care in a cohort of Argentinean patients [J].

Carnero Contentti, Edgar ;

Pablo Pettinicchi, Juan ;

Lopez, Pablo A. ;

Alonso, Ricardo ;

Garcea, Orlando ;

Eugenia Balbuena, Maria ;

Bortoluzzi, Christian ;

Silva, Emanuel ;

Cabrera, Mariela ;

Celeste Curbelo, Maria ;

Pablo Hryb, Javier ;

Luis Di Pace, Jose ;

Perassolo, Monica ;

Ianardi, Sebastian ;

Mainella, Carolina ;

Mellinger, Surai ;

Migliacci, Leonel ;

Pagani Cassara, Fatima ;

Sinay, Vladimiro ;

Carra, Adriana ;

Questa Laudani, Mathias ;

Ruiz Romagnolin, Emiliano ;

Liwacki, Susana ;

Piedrabuena, Raul ;

Tizio, Santiago ;

Tkachuk, Veronica .

MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2019, 33 :88-93

[6] Cognitive impairment in multiple sclerosis [J].

Chiaravalloti, Nancy D. ;

DeLuca, John .

LANCET NEUROLOGY, 2008, 7 (12) :1139-1151

[7]

Claire Simon Kelly, 2018, Mult Scler J Exp Transl Clin, V4, p2055217318813736, DOI 10.1177/2055217318813736

[8] Induction vs. escalating therapy in Multiple Sclerosis: practical implications [J].

Comi, Giancarlo .

NEUROLOGICAL SCIENCES, 2008, 29 (Suppl 2) :S253-S255

[9] Evolving concepts in the treatment of relapsing multiple sclerosis [J].

Comi, Giancarlo ;

Radaelli, Marta ;

Sorensen, Per Soelberg .

LANCET, 2017, 389 (10076) :1347-1356

[10] Early clinical predictors and progression of irreversible disability in multiple sclerosis: an amnesic process [J].

Confavreux, C ;

Vukusic, S ;

Adeleine, P .

BRAIN, 2003, 126 :770-782

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