End-of-life care in acute care hospitals in Canada: a quality finish?

被引:57
作者
Heyland, DK [1 ]
Groll, D
Rocker, G
Dodek, P
Gafni, A
Tranmer, J
Pichora, D
Lazar, N
Kutsogiannis, J
Shortt, S
Lam, M
机构
[1] Kingston Gen Hosp, Dept Med, Kingston, ON, Canada
[2] Univ Quebec, Dept Community Hlth & Epidemiol, Kingston, ON, Canada
[3] Queen Elizabeth 2 Hlth Sci Ctr, Dept Med, Halifax, NS, Canada
[4] Dalhousie Univ, Halifax, NS, Canada
[5] St Pauls Hosp, Program Clin Care Med, Vancouver, BC, Canada
[6] St Pauls Hosp, Ctr Hlth Evaluat & Outcome Sci, Vancouver, BC, Canada
[7] Univ British Columbia, Vancouver, BC V5Z 1M9, Canada
[8] McMaster Univ, Ctr Hlth Econ & Policy Anal, Hamilton, ON, Canada
[9] McMaster Univ, Dept Clin Epidemiol, Hamilton, ON, Canada
[10] Queens Univ, Dept Community Hlth & Epidemiol, Kingston, ON, Canada
[11] Kingston Gen Hosp, Dept Nursing, Kingston, ON, Canada
[12] Univ Hlth Network, Dept Med, Toronto, ON, Canada
[13] Univ Toronto, Toronto, ON, Canada
[14] Univ Alberta, Dept Crit Care, Edmonton, AB, Canada
[15] Queens Univ, Ctr Hlth Serv & Policy Res, Kingston, ON, Canada
关键词
D O I
10.1177/082585970502100306
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Understanding patients' and family members' perspectives on the relative importance of elements of end-of-life (EOL) care and their satisfaction with those elements will help prioritize quality improvement initiatives. We administered a face-to-face questionnaire containing a selection of 28 elements of care to eligible inpatients with advanced lung, heart, or liver disease, or metastatic cancer, and available family caregivers (FCGs) in five tertiary care hospitals across Canada. 440 of 569 (78%) eligible patients and 160 of 176 (91%) FCGs participated. No respondent reported complete satisfaction with all elements of care. The average satisfaction score was 4.6 on a 26 point scale. Medical patients reported lower levels of satisfaction than cancer patients. Elements rated as "extremely important' and anything other than "completely satisfied" most frequently by respondents related to discharge planning, availability of home health services, symptom relief, not being a burden, physician trust, and communication. In conclusion, most patients and their family members in our survey were not completely satisfied with EOL care. Improvement initiatives to target key elements identified by patients and FCGs have the potential to improve satisfaction with EOL care across care settings.
引用
收藏
页码:142 / 150
页数:9
相关论文
共 37 条
[1]  
[Anonymous], QUALITY END LIFE CAR
[2]  
[Anonymous], 2005, STILL NOT THERE QUAL
[3]  
[Anonymous], 1995, Journal of the American Medical Association, V274, P1591, DOI DOI 10.1001/JAMA.1995.03530200027032
[4]   Half the families of intensive care unit patients experience inadequate communication with physicians [J].
Azoulay, E ;
Chevret, S ;
Leleu, G ;
Pochard, F ;
Barboteu, M ;
Adrie, C ;
Canoui, P ;
Le Gall, JR ;
Schlemmer, B .
CRITICAL CARE MEDICINE, 2000, 28 (08) :3044-3049
[5]   Family satisfaction with end-of-life care in seriously ill hospitalized adults [J].
Baker, R ;
Wu, AW ;
Teno, JM ;
Kreling, B ;
Damiano, AM ;
Rubin, HR ;
Roach, MJ ;
Wenger, NS ;
Phillips, RS ;
Desbiens, NA ;
Connors, AF ;
Knaus, W ;
Lynn, J .
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2000, 48 (05) :S61-S69
[6]   ATTITUDES TOWARDS CARE OF THE DYING - A QUESTIONNAIRE SURVEY OF GENERAL-PRACTICE ATTENDERS [J].
CHARLTON, RC .
FAMILY PRACTICE, 1991, 8 (04) :356-359
[7]   The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians [J].
Curtis, JR ;
Patrick, DL ;
Caldwell, E ;
Greenlee, H ;
Collier, AC .
AIDS, 1999, 13 (09) :1123-1131
[8]   A prospective study of the impact of patient preferences on life-sustaining treatment and hospital cost [J].
Danis, M ;
Mutran, E ;
Garrett, JM ;
Stearns, SC ;
Slifkin, RT ;
Hanson, L ;
Williams, JF ;
Churchhill, LR .
CRITICAL CARE MEDICINE, 1996, 24 (11) :1811-1817
[9]   Translating family satisfaction data into quality improvement [J].
Dodek, PM ;
Heyland, DK ;
Rocker, GM ;
Cook, DJ .
CRITICAL CARE MEDICINE, 2004, 32 (09) :1922-1927
[10]   The promise of a good death [J].
Emanuel, EJ ;
Emanuel, LL .
LANCET, 1998, 351 :21-29