The importance of quality-of-life assessment in the management of patients with multiple sclerosis Recommendations from the Middle East MS Advisory Group

被引:0
作者
Al-Tahan, Abdel-Rahman M. [1 ]
Al-Jumah, Mohammed A. [2 ]
Bohlega, Saeed M. [3 ]
Al-Shammari, Suhail N. [4 ]
Al-Sharoqi, Isa A. [5 ]
Dahdaleh, Maurice P. [6 ]
Hosny, Hassan M. [7 ]
Yamout, Bassem I. [8 ]
机构
[1] King Saud Univ, Coll Med, King Khalid Univ Hosp, Neurol Sect, Riyadh 11461, Saudi Arabia
[2] King Saud Bin Abdulaziz Univ Hlth Sci, King Abdullah Int Med Res Ctr, Riyadh, Saudi Arabia
[3] King Faisal Specialist Hosp & Res Ctr, Dept Neurosci, Riyadh 11211, Saudi Arabia
[4] Kuwait Univ, Fac Med, Dept Med, Div Neurol, Kuwait, Kuwait
[5] Neurol Unit, Manama, Bahrain
[6] Arab Med Ctr, Dept Neurol, Amman, Jordan
[7] Cairo Univ, Fac Med, Dept Med, Cairo, Egypt
[8] Amer Univ Beirut Med Ctr, Div Neurol, Dept Internal Med, Beirut, Lebanon
关键词
IMPACT SCALE MSIS-29; PSYCHOMETRIC PROPERTIES; RATING-SCALES; PEOPLE; DISEASE; POPULATION; BURDEN; DISABILITIES; MULTICENTER; PERCEPTIONS;
D O I
暂无
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Multiple sclerosis (MS) has a major negative impact on patients' health-related quality of life (QoL). A group of MS experts in the Middle East met to develop recommendations for the routine assessment of QoL in patients with MS. The group recommended that patients need to be assessed once a year using the multiple sclerosis international QoL questionnaire (MusiQoL), which is available in Arabic. Assessments should be made when patients are relapse-free to avoid confounding factors. At other clinic visits, patients' QoL should also be monitored, alongside their physical assessment, using open and structured questions on disease features that are likely to affect their QoL. This approach should allow long-term monitoring of key features of MS that are important to patients' well being, and aid decision-making regarding their management, including the use of disease-modifying drugs. Neurosciences 2011; Vol. 16(2): 109-113
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页码:109 / 113
页数:5
相关论文
共 47 条
[1]  
Auty A, 1998, CAN J NEUROL SCI, V25, P31
[2]  
Barbotte E, 2001, B WORLD HEALTH ORGAN, V79, P1047
[3]   A review about the impact of multiple sclerosis on health-related quality of life [J].
Benito-León, J ;
Morales, JM ;
Rivera-Navarro, J ;
Mitchell, AJ .
DISABILITY AND REHABILITATION, 2003, 25 (23) :1291-1303
[4]   Intramuscular interferon beta-1a therapy in patients with relapsing-remitting multiple sclerosis: a 15-year follow-up study [J].
Bermel, R. A. ;
Weinstock-Guttman, B. ;
Bourdette, D. ;
Foulds, P. ;
You, X. ;
Rudick, R. A. .
MULTIPLE SCLEROSIS JOURNAL, 2010, 16 (05) :588-596
[5]   Rural-urban analyses of health-related quality of life among people with multiple sclerosis [J].
Buchanan, Robert J. ;
Zhu, Li ;
Schiffer, Randolph ;
Radin, Dagmar ;
James, Wesley .
JOURNAL OF RURAL HEALTH, 2008, 24 (03) :244-252
[6]   Validation of the functional assessment of multiple sclerosis quality of life instrument [J].
Cella, DF ;
Dineen, K ;
Arnason, B ;
Reder, A ;
Webster, KA ;
Karabatsos, G ;
Chang, C ;
Lloyd, S ;
Mo, F ;
Stewart, J ;
Stefoski, D .
NEUROLOGY, 1996, 47 (01) :129-139
[7]   Depression is the main determinant of quality of life in multiple sclerosis: A classification-regression (CART) study [J].
D'Alisa, S ;
Miscio, G ;
Baudo, S ;
Simone, A ;
Tesio, L ;
Mauro, A .
DISABILITY AND REHABILITATION, 2006, 28 (05) :307-314
[8]   The Global Adherence Project (GAP): a multicenter observational study on adherence to disease-modifying therapies in patients with relapsing-remitting multiple sclerosis [J].
Devonshire, V. ;
Lapierre, Y. ;
Macdonell, R. ;
Ramo-Tello, C. ;
Patti, F. ;
Fontoura, P. ;
Suchet, L. ;
Hyde, R. ;
Balla, I. ;
Frohman, E. M. ;
Kieseier, B. C. .
EUROPEAN JOURNAL OF NEUROLOGY, 2011, 18 (01) :69-77
[9]   Recent developments in the assessment of quality of life in Multiple Sclerosis (MS) [J].
Fischer, JS ;
LaRocca, NG ;
Miller, DM ;
Ritvo, PG ;
Andrews, H ;
Paty, D .
MULTIPLE SCLEROSIS JOURNAL, 1999, 5 (04) :251-259
[10]   Developing a disease-specific quality of life measure for people with multiple sclerosis [J].
Ford, HL ;
Gerry, E ;
Tennant, A ;
Whalley, D ;
Haigh, R ;
Johnson, MH .
CLINICAL REHABILITATION, 2001, 15 (03) :247-258