Who should know about our genetic makeup and why?

被引:14
作者
Takala, T [1 ]
Gylling, HA [1 ]
机构
[1] Univ Helsinki, FIN-00014 Helsinki, Finland
关键词
genetic testing; genetic screening; law; ethics; duties;
D O I
10.1136/jme.26.3.171
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Recent developments in biology have made it possible to acquire more and more precise information concerning our genetic makeup. Although the most far-reaching effects of these developments will probably be felt only, after the Human Genome Project has been completed in a few years' time, scientists call even today, identify a number of genetic disorders which may cause illness and disease in their carriers. The improved knowledge regarded the human genome will, it is provided, in the near future make diagnoses more accurate and treatments more effective, and thereby considerably reduced and prevent unnecessary suffering. On the other hand, however, the knowledge can also be, depending on the case, futile, distressing or plainly harmful. This is why we propose to answer in this paper the dual question: who should know about our genetic makeup and why? Through all analysis of prudential, moral and legal grounds for acquiring the information, we conclude that, at least oil the levels of law and social policy practically nobody is either duty-bound to receive or entitled to have that knowledge.
引用
收藏
页码:171 / 174
页数:4
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