"I'm not the woman I was": Women's perceptions of the effects of fibromyalgia on private life

被引:17
作者
Briones-Vozmediano, Erica [1 ,2 ]
Vives-Cases, Carmen [2 ,3 ,4 ]
Goicolea, Isabel [2 ,5 ]
机构
[1] Univ Lleida, Fac Nursing & Physiotherapy, Dept Nursing & Physiotherapy, St Montserrat Roig 2, Lleida 25198, Spain
[2] Univ Alicante, Publ Hlth Res Grp, Alicante, Spain
[3] Univ Alicante, Dept Community Nursing Prevent Med & Publ Hlth &, Alicante, Spain
[4] Consorcio Invest Biomed Red Epidemiol & Salud Pub, Ctr Biomed Res Epidemiol & Publ Hlth, Barcelona, Spain
[5] Umea Univ, Dept Publ Hlth & Clin Med, Epidemiol & Global Hlth Unit, Umea, Sweden
关键词
PATIENTS EXPERIENCES; SICK ROLE; GENDER; HEALTH; ILLNESS; IDENTITY; SELF; MENS; CONSTRUCTIONS; SEXUALITY;
D O I
10.1080/07399332.2016.1178265
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
In this qualitative study, we explored how gender shapes women's experiences of living with fibromyalgia and how it affects their private lives. Through thematic analysis of data from 13 in-depth interviews in Spain, we identified seven themes which reflect that these women feel remorse and frustration for not being able to continue to fulfill the gender expectation of caring for others and for the home. This research contributes to a better understanding of what suffering from fibromyalgia implies for women and provides insights into how families and providers can support women with fibromyalgia in order to achieve a beneficial lifestyle.
引用
收藏
页码:836 / 854
页数:19
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