Problem solving in relation to resources in everyday life in families of children with disabilities: a pilot study

被引:3
作者
Ylven, Regina [1 ,2 ]
Granlund, Mats [3 ]
Persson, Carina [2 ,4 ]
机构
[1] Malardalen Univ, Sch Hlth Care & Social Welf, SE-72123 Vasteras, Sweden
[2] Karolinska Inst, Div Nursing, Dept Neurobiol, Huddinge, Sweden
[3] Sch Hlth Sci, Dept Behav Sci & Social Work, Jonkoping, Sweden
[4] Linnaeus Univ, Sch Hlth & Caring Sci, Kalmar, Sweden
关键词
children with disabilities; families; pilot study; problem solving styles; SPSI-R:L; QUALITY; QUESTIONNAIRE; INTERNET; MOTHERS; STRESS;
D O I
10.1097/MRR.0b013e328351089b
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Problem solving is recognized as a skill, helping families of children with disabilities to manage problems in everyday life. Family problem-solving skills may therefore be seen as an important outcome of a child and youth habilitation service. The aim of this pilot feasibility study was to examine the design of a future web-based questionnaire study focusing on problem-solving patterns in relation to resources in families of children with disabilities. The descriptive statistical analyses built on data from 13 families and findings showed an overall satisfactory score distribution for three of the included instruments, whereas two instruments showed floor effects in one third of the items. Findings indicated design problems with data collection related to adapting questionnaires to a web-based survey format and to problems with the stop function that was added. Implementing the main study using web-based surveys needs critical considerations according to the choice of the web tool and the recruitment process.
引用
收藏
页码:102 / 108
页数:7
相关论文
共 42 条
[31]   Explaining the parental stress of fathers and mothers caring for a child with intellectual disability:: a Double ABCX Model [J].
Saloviita, T ;
Itälinna, M ;
Leinonen, E .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2003, 47 :300-312
[32]  
Simeonsson R.J., 1984, Abilities index
[33]  
Singer GHS, 2006, AM J MENT RETARD, V111, P155, DOI 10.1352/0895-8017(2006)111[155:MOCSOD]2.0.CO
[34]  
2
[35]   Conceptualizing and measuring family quality of life [J].
Summers, JA ;
Poston, DJ ;
Turnbull, AP ;
Marquis, J ;
Hoffman, L ;
Mannan, H ;
Wang, M .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2005, 49 :777-783
[36]   A tutorial on pilot studies: the what, why and how [J].
Thabane, Lehana ;
Ma, Jinhui ;
Chu, Rong ;
Cheng, Ji ;
Ismaila, Afisi ;
Rios, Lorena P. ;
Robson, Reid ;
Thabane, Marroon ;
Giangregorio, Lora ;
Goldsmith, Charles H. .
BMC MEDICAL RESEARCH METHODOLOGY, 2010, 10
[37]  
van Teijlingen Edwin, 2002, Nurs Stand, V16, P33
[38]  
WEISNER TS, 1997, ECOCULTURAL FAMILY I, V1
[39]   Parent-child interaction: a comparison of parents' perceptions in three groups [J].
Wilder, J ;
Axelsson, C ;
Granlund, M .
DISABILITY AND REHABILITATION, 2004, 26 (21-22) :1313-1322
[40]  
Wilder J, 2008, THESIS STOCKHOLM U