The Experiences of Young People Living With Cancer in Regional and Remote Australia: A Qualitative Study

被引:5
作者
Sariman, Jodi A. [1 ,2 ]
Harris, Nonie M. [1 ]
Harvey, Desley [3 ,4 ]
Sansom-Daly, Ursula M. [5 ]
机构
[1] James Cook Univ, Coll Arts Soc & Educ CASE, Social Work & Human Serv, Div Trop Environm & Soc DTES, Cairns, Qld, Australia
[2] Cairns & Hinterland Hosp & Hlth Serv, Social Work Dept, Allied Hlth, Cairns, Qld, Australia
[3] James Cook Univ, Coll Healthcare Sci, Cairns, Qld, Australia
[4] Cairns & Hinterland Hosp & Hlth Serv, Dept Allied Hlth, Cairns, Qld, Australia
[5] Univ New South Wales Med & Hlth, Sch Womens & Childrens Hlth, Behav Sci Unit, Sydney, NSW, Australia
基金
英国医学研究理事会;
关键词
Nonmetropolitan; Rural; Young People; Adolescent; Cancer; Social Work; Regional; Remote; Australia; CARE; COMMUNICATION; ADOLESCENTS; ADULTS;
D O I
10.1080/0312407X.2021.1977355
中图分类号
C916 [社会工作、社会管理、社会规划];
学科分类号
1204 ;
摘要
There is limited qualitative research specifically exploring the experiences of young people living with cancer in nonmetropolitan Australia. This article reports on an in-depth qualitative study exploring young people's experiences of diagnosis, treatment, and postcancer care and support, focusing on the impact of living in regional and remote Queensland, Australia. Thematically coded data from in-depth interviews were managed using NVivo 12 qualitative software. Connections with place, knowledge, people, support, lifestyle, and peers were key themes. Travelling for treatment interrupted these connections, with participants desiring treatment closer to home. Preventive social work in metropolitan and nonmetropolitan areas that supports maintaining connections for young patients from regional and remote areas is recommended. Further research, including the impact on young Aboriginal and Torres Strait Islander people with cancer and on the role of social workers, will inform improvements in social work practice. IMPLICATIONS Recognising the importance of connections for young people living with cancer from regional and remote areas can inform social work psychosocial assessments in metropolitan and nonmetropolitan settings, assisting social workers to respond appropriately to information young people share and supporting these valued connections. Enhancing preventive social work care with young people living with cancer from regional and remote areas will involve direct, regular communication at diagnosis and during and after cancer treatment using appropriate age-specific interventions.
引用
收藏
页码:205 / 218
页数:14
相关论文
共 50 条
[21]   A new Australian online and phone mental health support service for young people living with cancer [J].
Patterson, Pandora ;
McDonald, Fiona E. J. ;
Orchard, Peter .
AUSTRALASIAN PSYCHIATRY, 2014, 22 (02) :165-169
[22]   The palliative care experiences of adults living in regional and remote areas of Australia: A literature review [J].
Jansson, Melissa ;
Dixon, Kathleen ;
Hatcher, Deborah .
CONTEMPORARY NURSE, 2017, 53 (01) :94-104
[23]   Quality of Life in the First Year of Cancer Diagnosis among Aboriginal and Non-Aboriginal People Living in Regional and Remote Areas of Australia [J].
Elder-Robinson, Elaina ;
Diaz, Abbey ;
Howard, Kirsten ;
Parikh, Darshit Rajeshkumar ;
Kar, Giam ;
Garvey, Gail .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2022, 19 (01)
[24]   Experiences of appearance conversations among young people living with a visible difference [J].
Kling, Johanna ;
Feragen, Kristin Billaud .
BODY IMAGE, 2024, 49
[25]   Bilingual young people's experiences of interpreting in primary care: a qualitative study [J].
Free, C ;
Green, J ;
Bhavnani, V ;
Newman, A .
BRITISH JOURNAL OF GENERAL PRACTICE, 2003, 53 (492) :530-535
[26]   What do patients with a rare cancer living in rural, regional or remote areas and stakeholders want from a peer support program? A qualitative study [J].
Hemming, L. ;
Duijts, S. F. A. ;
Cockburn, C. ;
Wilson, C. ;
Yuen, E. Y. N. ;
Spelten, E. .
BMC CANCER, 2025, 25 (01)
[27]   Strategies for living with the risk of anaphylaxis in adolescence: qualitative study of young people and their parents [J].
Gallagher, Michael ;
Worth, Allison ;
Cunningham-Burley, Sarah ;
Sheikh, Aziz .
PRIMARY CARE RESPIRATORY JOURNAL, 2012, 21 (04) :392-397
[28]   Treatment Refusal by Cancer Patients: A Qualitative Study of Oncology Health Professionals' Views and Experiences in Australia [J].
O'Connor, Moira ;
Pantaleo, Ashleigh ;
Williams, Tracey ;
Theophilus, Mary ;
Joseph, Jordan ;
Hart, Nicolas H. ;
Haywood, Darren .
EUROPEAN JOURNAL OF CANCER CARE, 2025, 2025 (01)
[29]   Experiences of service transitions in Australian early intervention psychosis services: a qualitative study with young people and their supporters [J].
Milton, Alyssa ;
Powell, Tacita ;
Conn, Katrina ;
Einboden, Rochelle ;
Buus, Niels ;
Glozier, Nicholas .
BMC PSYCHIATRY, 2022, 22 (01)
[30]   Cancer treatment decisions for people living with dementia: Experiences of family carers, a qualitative interview study [J].
Hynes, Catherine ;
Hodges, Victoria J. ;
Wyld, Lynda ;
Mitchell, Caroline .
HEALTH EXPECTATIONS, 2022, 25 (03) :1131-1139