Factors Associated With Parental Activation in Pediatric Hematopoietic Stem Cell Transplant

被引：53

作者：

Pennarola, Brian W.

Rodday, Angie Mae

Mayer, Deborah K. ^{[2
]}

Ratichek, Sara J.

Davies, Stella M. ^{[3
]}

Syrjala, Karen L. ^{[4
]}

Patel, Sunita ^{[5
]}

Bingen, Kristin ^{[6
]}

Kupst, Mary Jo ^{[6
]}

Schwartz, Lisa ^{[7
]}

Guinan, Eva C. ^{[8
,9
]}

Hibbard, Judith H. ^{[10
]}

Parsons, Susan K. ^{[1
]}

机构：

[1] Tufts Med Ctr, ICRHPS, Hlth Inst, Boston, MA 02111 USA

[2] Univ N Carolina, Chapel Hill, NC USA

[3] Cincinnati Childrens Hosp Med Ctr, Cincinnati, OH USA

[4] Fred Hutchinson Canc Res Ctr, Seattle, WA 98104 USA

[5] City Hope Natl Med Ctr, Duarte, CA 91010 USA

[6] Med Coll Wisconsin, Milwaukee, WI 53226 USA

[7] Childrens Hosp Philadelphia, Philadelphia, PA 19104 USA

[8] Childrens Hosp, Dana Farber Canc Inst, Dept Pediat Oncol, Boston, MA 02115 USA

[9] Childrens Hosp, Div Hematol Oncol, Boston, MA 02115 USA

[10] Univ Oregon, Eugene, OR 97403 USA

来源：

MEDICAL CARE RESEARCH AND REVIEW | 2012年 / 69卷 / 02期

关键词：

cancer; oncology; hematopoietic stem cell transplant (HSCT); children; patient activation; Patient Activation Measure; QUALITY-OF-LIFE; PATIENT ACTIVATION; SELF-EFFICACY; CHRONIC ILLNESS; CHRONIC DISEASE; MEASURE PAM; HEALTH; MANAGEMENT; CHILDREN; CARE;

D O I：

10.1177/1077558711431460

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Patient activation, the extension of self-efficacy into self-management, is an essential component of effective chronic care. In pediatric populations, caregiver activation is also needed for proper disease management. This study investigates the relationships between parental activation and other characteristics of parent-child dyads (N = 198) presenting for pediatric hematopoietic stem cell transplant. Parental activation concerning their child's health was assessed using the Parent Patient Activation Measure (Parent-PAM), a modified version of the well-validated Patient Activation Measure (PAM). Using hierarchical linear regression and following the Belsky process model for determining parenting behaviors, a multivariate model was created for parental activation on behalf of their child that showed that the parent's age, rating of their own general health, self-activation, and duration of the child's illness were significantly related to Parent-PAM score. Our findings characterize a potentially distinct form of activation in a parent-child cohort preparing for a demanding clinical course.

引用

页码：194 / 214

页数：21

共 44 条

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