Self-stigma and its associations with stress and quality of life among Malaysian parents of children with autism

被引:24
作者
Chu, Shin Ying [1 ]
Park, Hyeran [2 ]
Lee, Jaehoon [3 ]
Shaharuddin, Khadijah Kamil binti [4 ]
Gan, Chun Hong [5 ]
机构
[1] Univ Kebangsaan Malaysia, Speech Sci Programme, Fac Hlth Sci, Ctr Hlth Ageing & Wellness H CARE, Jalan Raja Muda Abdul Aziz, Kuala Lumpur 50300, Malaysia
[2] Texas Tech Univ, Inst Measurement Methodol Anal & Policy, Lubbock, TX 79409 USA
[3] Texas Tech Univ, Inst Measurement Methodol Anal & Policy, Dept Educ Psychol & Leadership, Lubbock, TX 79409 USA
[4] Univ Kebangsaan Malaysia, Fac Hlth Sci, Speech Sci Programme, Kuala Lumpur, Malaysia
[5] Univ Kebangsaan Malaysia, Fac Hlth Sci, Ctr Rehabil & Special Needs, Clin Psychol Programme, Kuala Lumpur, Malaysia
关键词
autism spectrum disorder; parents; quality of life; stigma; stress; AFFILIATE STIGMA; SPECTRUM DISORDERS; CULTURAL-FACTORS; CAREGIVERS; FAMILIES; DEPRESSION; SPEECH; PEOPLE; HEALTH;
D O I
10.1111/cch.12771
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Background This study explored the relationship between self-perceived stigmatization (affiliate stigma), stress and quality of life among parents of children with autism spectrum disorder (ASD). Method Participants (N = 110) filled-in the Affiliate Stigma Scale, the Caregiver Burden Inventory and the CarerQOL scale. Results Parents reported low scores on stigma and fair levels of stress and quality of life, indicating that parents do not feel stigmatized by affiliation with a child with ASD nor are they stressed from affiliate stigma. After controlling for demographic factors, both the relationships of affiliate stigma with stress and with quality of life were weak, indicating that stigma may have little to no effect on stress and quality of life. Conclusion Cultural and religious beliefs may play a part in the acceptance of a child's condition, resulting in less impact of stigma on the parents.
引用
收藏
页码:485 / 494
页数:10
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