Assessing carer needs in chronic obstructive pulmonary disease

被引:23
作者
Farquhar, Morag [1 ]
机构
[1] Univ East Anglia, Sch Hlth Sci, Norwich Res Pk, Norwich NR4 7TJ, Norfolk, England
基金
美国国家卫生研究院;
关键词
Carers; COPD; assessment; needs; person-centred care; OF-LIFE CARE; ALERT THERMOMETER CAT; ASSESSMENT TOOL CSNAT; FAMILY CARERS; INFORMAL CAREGIVERS; PALLIATIVE CARE; COPD PATIENTS; ELDERLY-PATIENTS; BEREAVED CARERS; HEALTH OUTCOMES;
D O I
10.1177/1479972317719086
中图分类号
R56 [呼吸系及胸部疾病];
学科分类号
摘要
Informal carers play a key role in supporting patients with chronic obstructive pulmonary disease (COPD), particularly when disease is advanced. They also enable delivery of healthcare professional advice. There is a well-established impact of the caring role on carers in both the generic and COPD-specific literature. The needs of carers of patients with COPD are both generic to the caring role and disease specific. Healthcare professionals and health systems supporting patients with COPD need to actively identify and support carers. Carer assessment enables unmet needs to be identified and appropriately addressed. Assessments should consider carers' support needs, their caring capacity and practices, and carers own clinical needs. This narrative review outlines considerations for the assessment process including what should be assessed, who should conduct assessment and what should happen as a result of assessment.
引用
收藏
页码:26 / 35
页数:10
相关论文
共 82 条
[1]   Negotiating the care-giving role: family members' experience during critical exacerbation of COPD in Norway [J].
Aasbo, Gunvor ;
Rugkasa, Jorun ;
Solbraekke, Kari N. ;
Werner, Anne .
HEALTH & SOCIAL CARE IN THE COMMUNITY, 2017, 25 (02) :612-620
[2]   Perceived breathlessness and psychological distress among patients with chronic obstructive pulmonary disease and their spouses [J].
Al-Gamal, Ekhlas ;
Yorke, Janelle .
NURSING & HEALTH SCIENCES, 2014, 16 (01) :103-111
[3]  
[Anonymous], 2016, PALLIATIVE CARE RESP
[4]  
[Anonymous], BMJ SUPPORT PALLI S1
[5]   Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice [J].
Aoun, Samar ;
Toye, Chris ;
Deas, Kathleen ;
Howting, Denise ;
Ewing, Gail ;
Grande, Gunn ;
Stajduhar, Kelli .
PALLIATIVE MEDICINE, 2015, 29 (10) :929-938
[6]   MUTUALITY AND PREPAREDNESS AS PREDICTORS OF CAREGIVER ROLE STRAIN [J].
ARCHBOLD, PG ;
STEWART, BJ ;
GREENLICK, MR ;
HARVATH, T .
RESEARCH IN NURSING & HEALTH, 1990, 13 (06) :375-384
[7]   The dyspnea-anxiety-dyspnea cycle - COPD patients' stories of breathlessness: "It's scary/when you can't breathe" [J].
Bailey, PH .
QUALITATIVE HEALTH RESEARCH, 2004, 14 (06) :760-778
[8]   'The Hidden Client' - women caring for husbands with COPD: their experience of quality of life [J].
Bergs, D .
JOURNAL OF CLINICAL NURSING, 2002, 11 (05) :613-621
[9]   Rates and predictors of depression status among caregivers of patients with COPD hospitalized for acute exacerbations: a prospective study [J].
Bernabeu-Mora, Roberto ;
Garcia-Guillamon, Gloria ;
Montilla-Herrador, Joaquina ;
Escolar-Reina, Pilar ;
Garcia-Vidal, Jose Antonio ;
Medina-Mirapeix, Francesc .
INTERNATIONAL JOURNAL OF CHRONIC OBSTRUCTIVE PULMONARY DISEASE, 2016, 11 :3199-3205
[10]  
Booth S, 2011, CAMBRIDGE BIS TREATM