Living Profiles: Design of a health media platform for teens with special healthcare needs

被引：14

作者：

Chira, Peter ^{[1
]}

Nugent, Lisa ^{[2
,3
]}

Miller, Kimberly ^{[3
]}

Park, Tina ^{[3
]}

Donahue, Sean ^{[3
]}

Soni, Amit ^{[4
]}

Nugent, Diane ^{[4
]}

Sandborg, Christy

机构：

[1] Stanford Univ, Sch Med, Dept Pediat, Div Rheumatol, Palo Alto, CA 94304 USA

[2] Johnson & Johnson Corp, Comprehens Care, Global Strateg Design Off, New York, NY 10001 USA

[3] Art Ctr Coll Design, Pasadena, CA 91105 USA

[4] Childrens Hosp Orange Cty, Orange, CA 92868 USA

来源：

JOURNAL OF BIOMEDICAL INFORMATICS | 2010年 / 43卷 / 05期

关键词：

Teens; Transition; Personal health record; Design research methods; ADOLESCENTS; TRANSITION;

D O I：

10.1016/j.jbi.2010.05.008

中图分类号：

TP39 [计算机的应用];

学科分类号：

081203 ; 0835 ;

摘要：

Living Profiles is a health media platform in development that aggregates multiple data flows to help teens with special healthcare needs (SHCN), particularly with regard to self-management and independence. A teen-oriented personal health record (PHR) incorporates typical teen behaviors and attitudes about health and wellness, encompasses how teens perceive and convey quality of life, and aligns with data related to their chronic medical condition. We have conceived a secure personalized user interface called the Quality of Life Timeline, which will assist with the transition from pediatric care to an adult provider through modules that include a mood meter, reminder device, and teleport medicine. With this personalized PHR, teens with SHCN can better understand their condition and its effects on daily activities and life goals and vice versa; additionally, use of this PHR allows for better information sharing and communication between providers and patients. The use of a teen-oriented tool such as Living Profiles can impact teens' overall quality of life and disease self-management, important attributes for a successful transition program. (C) 2010 Elsevier Inc. All rights reserved.

引用

页码：S9 / S12

页数：4

共 12 条

[1]

[Anonymous], RETH POW POT PERS HL

[2] Older Adolescents' Motivations for Social Network Site Use: The Influence of Gender, Group Identity, and Collective Self-Esteem [J].

Barker, Valerie .

CYBERPSYCHOLOGY & BEHAVIOR, 2009, 12 (02) :209-213

[3] TRANSITION FROM CHILD-CENTERED TO ADULT HEALTH-CARE SYSTEMS FOR ADOLESCENTS WITH CHRONIC CONDITIONS - A POSITION PAPER OF THE SOCIETY FOR ADOLESCENT MEDICINE [J].

BLUM, RW ;

GARELL, D ;

HODGMAN, CH ;

JORISSEN, TW ;

OKINOW, NA ;

ORR, DP ;

SLAP, GB .

JOURNAL OF ADOLESCENT HEALTH, 1993, 14 (07) :570-576

[4] Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease [J].

Callahan, ST ;

Feinstein, R ;

Keenan, P .

CURRENT OPINION IN PEDIATRICS, 2001, 13 (04) :310-316

[5]

Gaver B., 1999, Interactions, V6, P21, DOI [DOI 10.1145/291224.291235, https://doi.org/10.1145/291224.291235]

[6]

Kaufman Miriam, 2006, Prog Transplant, V16, P286

[7] Transitions in the lives of young people with complex healthcare needs [J].

Kirk, S. .

CHILD CARE HEALTH AND DEVELOPMENT, 2008, 34 (05) :567-575

[8]

Lenhart A., 2009, TEENS MOBILE PHONES

[9]

Lenhart A., 2010, Social Media Mobile Internet Use among Teens and Young Adults. Millennials

[10]

Nugent L, 2007, KNOWLEDGE TECHNOLOGY, V20, P269

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