Evaluating the Feasibility of a Play-Based Telehealth Intervention Program for Children with Prader-Willi Syndrome

被引:22
|
作者
Dimitropoulos, Anastasia [1 ]
Zyga, Olena [1 ]
Russ, Sandra [1 ]
机构
[1] Case Western Reserve Univ, Dept Psychol Sci, 11220 Bellflower Rd,MTHM 109, Cleveland, OH 44106 USA
关键词
Prader-Willi syndrome; Telehealth; Play-based intervention; Video conferencing; PRETEND PLAY; DEVELOPMENTAL-DISABILITIES; BEHAVIORAL PHENOTYPES; MALADAPTIVE BEHAVIOR; YOUNG-CHILDREN; DISORDERS; LANGUAGE; ACCEPTABILITY; TELEMEDICINE; PARENTS;
D O I
10.1007/s10803-017-3196-z
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Here we report the feasibility and acceptability of telehealth for direct intervention in children with Prader-Willi syndrome (PWS). Children with PWS have social-cognitive challenges that are similar to children with ASD. However, developing behavioral interventions for individuals with PWS is faced with the significant challenge of enrolling enough participants for local studies where multiple visits per week are indicated for effective intervention. This study delivered a 6-week play-based intervention via telehealth directly to eight children with PWS (6-12 years). Participants completed the program with minimal behavioral or technological difficulty (#sessions M = 11.875/12). Behavioral Intervention Rating Scale results indicate good acceptability (M = 5.54/6.00). These findings support using telehealth in rare disorders and delivering intervention directly to children with developmental delays through this modality.
引用
收藏
页码:2814 / 2825
页数:12
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