Evaluating the Feasibility of a Play-Based Telehealth Intervention Program for Children with Prader-Willi Syndrome

被引:22
|
作者
Dimitropoulos, Anastasia [1 ]
Zyga, Olena [1 ]
Russ, Sandra [1 ]
机构
[1] Case Western Reserve Univ, Dept Psychol Sci, 11220 Bellflower Rd,MTHM 109, Cleveland, OH 44106 USA
关键词
Prader-Willi syndrome; Telehealth; Play-based intervention; Video conferencing; PRETEND PLAY; DEVELOPMENTAL-DISABILITIES; BEHAVIORAL PHENOTYPES; MALADAPTIVE BEHAVIOR; YOUNG-CHILDREN; DISORDERS; LANGUAGE; ACCEPTABILITY; TELEMEDICINE; PARENTS;
D O I
10.1007/s10803-017-3196-z
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Here we report the feasibility and acceptability of telehealth for direct intervention in children with Prader-Willi syndrome (PWS). Children with PWS have social-cognitive challenges that are similar to children with ASD. However, developing behavioral interventions for individuals with PWS is faced with the significant challenge of enrolling enough participants for local studies where multiple visits per week are indicated for effective intervention. This study delivered a 6-week play-based intervention via telehealth directly to eight children with PWS (6-12 years). Participants completed the program with minimal behavioral or technological difficulty (#sessions M = 11.875/12). Behavioral Intervention Rating Scale results indicate good acceptability (M = 5.54/6.00). These findings support using telehealth in rare disorders and delivering intervention directly to children with developmental delays through this modality.
引用
收藏
页码:2814 / 2825
页数:12
相关论文
共 50 条
  • [11] Respiratory control in children with Prader-Willi syndrome
    Schluter, B
    Buschatz, D
    Trowitzsch, E
    Aksu, F
    Andler, W
    EUROPEAN JOURNAL OF PEDIATRICS, 1997, 156 (01) : 65 - 68
  • [12] Orthopedic manifestations in children with Prader-Willi syndrome
    Miao, Miao
    Zhao, Guo-Qiang
    Zhou, Qiong
    Chao, Yun-Qi
    Zou, Chao-Chun
    BMC PEDIATRICS, 2024, 24 (01)
  • [13] Rehabilitation issues for children with Prader-Willi syndrome
    Lang, Russell
    Smith, Whitney
    Ence, Whitney
    Langthorne, Paul
    DEVELOPMENTAL NEUROREHABILITATION, 2010, 13 (01) : 1 - 2
  • [14] Cardiac evaluation in children with Prader-Willi syndrome
    Marcus, Karen A.
    van Alfen-van der Velden, Janielle A. A. E. M.
    Otten, Barto J.
    Weijers, Gert
    Yntema, Helger G.
    de Korte, Chris L.
    Kapusta, Livia
    ACTA PAEDIATRICA, 2012, 101 (05) : e225 - e231
  • [15] Urinary incontinence in children with Prader-Willi syndrome
    von Gontard, A.
    Didden, R.
    Jikkel, L.
    Curfs, L. M. G.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2007, 51 : 659 - 659
  • [16] Respiratory complications of children with Prader-Willi syndrome
    Negro, Valentina
    Bridges, Nicola
    Bush, Andrew
    Cutrera, Renato
    Tan, Hui-leng
    EUROPEAN RESPIRATORY JOURNAL, 2016, 48
  • [17] WEIGHT CONTROL OF CHILDREN WITH PRADER-WILLI SYNDROME
    PIPES, PL
    HOLM, VA
    JOURNAL OF THE AMERICAN DIETETIC ASSOCIATION, 1973, 62 (05) : 520 - 524
  • [18] ENDOCRINE INVESTIGATIONS IN CHILDREN WITH PRADER-WILLI SYNDROME
    HWU, K
    HENSON, H
    BROWN, B
    LEBLANC, JA
    GREENBERG, F
    KLISH, W
    LEE, PDK
    CLINICAL RESEARCH, 1991, 39 (04): : A836 - A836
  • [19] BEHAVIORAL PHENOTYPE IN CHILDREN WITH PRADER-WILLI SYNDROME
    Alsaleh, N.
    Gupta, P.
    Pula, J.
    JOURNAL OF INVESTIGATIVE MEDICINE, 2016, 64 (01) : 210 - 210
  • [20] Management Preschool Children of Prader-Willi Syndrome
    Bajraktarevic, Adnan
    Uzicanin, Sajra
    Krupic, Ferid
    Abduzaimovic, Alisa
    Beslagic, Emina
    Suljevic, Ismet
    Masala, Almir
    HORMONE RESEARCH IN PAEDIATRICS, 2016, 86 : 341 - 342