SUFFERING EASES OVER TIME: THE EXPERIENCE OF FAMILIES IN THE CARE OF CHILDREN WITH CONGENITAL ANOMALIES

被引：7

作者：

Guiller, Cristiana Araujo ^{[1
]}

Dupas, Giselle ^{[2
]}

Mandetta Pettengill, Myriam Aparecida ^{[3
]}

机构：

[1] Univ Fed Sao Paulo, Hosp Sao Paulo, Sao Paulo, Brazil

[2] Univ Fed Sao Carlos, BR-13560 Sao Carlos, SP, Brazil

[3] Univ Fed Sao Paulo, Sao Paulo, Brazil

来源：

REVISTA LATINO-AMERICANA DE ENFERMAGEM | 2009年 / 17卷 / 04期

关键词：

nursing; congenital abnormalities; child; family; CANCER;

D O I：

10.1590/S0104-11692009000400010

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

This study aimed to understand the experience of caring for a child with a congenital anomaly from the family's perspective. Symbolic Interactionism and Grounded Theory were the theoretical and methodological references, respectively. Data collection was carried out with eight families with children having congenital anomalies through semi-structured interviews and participating observation. Data analysis reached axial coding. Results revealed two phenomena in the experience of families in delivering care to children with congenital anomalies - Facing an initially difficult experience and suffering eases over time. We concluded that the understanding of this experience supports the need to reconsider the nursing care provided to families in the care of children with congenital anomalies.

引用

页码：495 / 500

页数：6

共 18 条

[1]

BALBINO FS, 2004, THESIS UNIFESP SAO P

[2]

Baumann S L, 1999, J Pediatr Nurs, V14, P369, DOI 10.1016/S0882-5963(99)80066-9

[3]

BOFF Leonardo., 1999, Saber cuidar: etica do humano, compaixao pela terra

[4]

CHARON JM, 1989, SYMBOLIC INTERACIONI

[5]

Chenitz W.C., 1986, From Practice to Grounded Theory: Qualitative Research in Nursing

[6] Hidden financial costs in treatment for childhood cancer: An Australian study of lifestyle implications for families absorbing out-of-pocket expenses [J].

Cohn, RJ ;

Goodenough, B ;

Foreman, T ;

Suneson, J .

JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY, 2003, 25 (11) :854-863

[7]

DUARTE C. M. R., 2000, CIENCIA SAUDE COLETI, V5, P443, DOI DOI 10.1590/S1413-81232000000200016

[8]

Dupas G, 1997, ACTA ONCOL BRAS, V17, P99

[9]

FRACOLLI RA, 2006, REME REV MIN ENFERM, V10, P125

[10]

GUILLER CA, 1971, ACTA PAUL ENFERM, V20, P18

← 1 2 →