Quality of life of caregivers of patients with progressive neurological disease

被引:0
作者
Kozakova, R. [1 ]
Buzgova, R. [1 ]
机构
[1] LF OU, Ustav Osetrovatelstvi & Porodni Asistence, Syllabova 19, Ostrava 70300, Czech Republic
关键词
quality of life; caregiver; progressive neurological diseases; PARKINSONS-DISEASE; PALLIATIVE CARE; FAMILY CAREGIVERS; DEMENTIA; RELIABILITY; VALIDATION; PEOPLE; EXPERIENCES; VALIDITY; BATTERY;
D O I
10.14735/amcsnn2018653
中图分类号
Q189 [神经科学];
学科分类号
071006 ;
摘要
Progressive neurological diseases have a profound impact on the quality of life of patients and their family caregivers. Abroad, questionnaires and scales are used to evaluate caregivers' quality of life and to provide follow-up support and individualized care. The aim of this review article is to describe and analyze the scales used in assessing the quality of life of caregivers of patients with progressive neurological diseases. By searching in electronic databases, 11 specific scales designed to assess caregivers' quality of life were found - out of which 6 specific tools for caregivers of patients with dementia, 2 tools for caregivers of patients with Huntington's disease, 1 scale for caregivers of patients with multiple sclerosis, and 2 scales for caregivers of patients with Parkinson's disease. These scales are recommended to be used in both clinical practice and research.
引用
收藏
页码:653 / 657
页数:5
相关论文
共 50 条
  • [31] Quality of Life for Caregivers of Persons With Alzheimer's Disease Living in Sardinia, Italy
    Vellone, Ercole
    Piras, Giovanni
    Venturini, Giulia
    Alvaro, Rosaria
    Cohen, Marlene Z.
    JOURNAL OF TRANSCULTURAL NURSING, 2012, 23 (01) : 46 - 55
  • [32] Quality of life and mental health in caregivers of outpatients with advanced cancer
    Wadhwa, Deepa
    Burman, Debika
    Swami, Nadia
    Rodin, Gary
    Lo, Christopher
    Zimmermann, Camilla
    PSYCHO-ONCOLOGY, 2013, 22 (02) : 403 - 410
  • [33] Quality of life of caregivers
    Glozman J.M.
    Neuropsychology Review, 2004, 14 (4) : 183 - 196
  • [34] Evaluation of the Quality of Life of Caregivers in Gynecological Cancer Patients
    Seven, Memnun
    Yilmaz, Sakine
    Sahin, Eda
    Akyuz, Aygul
    JOURNAL OF CANCER EDUCATION, 2014, 29 (02) : 325 - 332
  • [35] Quality of life in a Brazilian sample of patients with Parkinson's disease and their caregivers
    Schestatsky, Pedro
    Zanatto, Vanessa Cassina
    Margis, Regina
    Chachamovich, Eduardo
    Reche, Mateus
    Batista, Rodrigo Gomes
    Fricke, Daniele
    Rieder, Carlos R. M.
    REVISTA BRASILEIRA DE PSIQUIATRIA, 2006, 28 (03) : 209 - 211
  • [36] Quality-of-life perception by Parkinson's disease patients and caregivers
    Balash, Y.
    Korczyn, A. D.
    Knaani, J.
    Migirov, A. A.
    Gurevich, T.
    ACTA NEUROLOGICA SCANDINAVICA, 2017, 136 (02): : 151 - 154
  • [37] Assessment of Quality of Life in Chinese Patients With Inflammatory Bowel Disease and their Caregivers
    Liu, Rui
    Tang, Anliu
    Wang, Xiaoyan
    Shen, Shourong
    INFLAMMATORY BOWEL DISEASES, 2018, 24 (09) : 2039 - 2047
  • [38] Quality of Life in Alzheimer Disease A Comparison of Patients' and Caregivers' Points of View
    Zucchella, Chiara
    Bartolo, Michelangelo
    Bernini, Sara
    Picascia, Marta
    Sinforiani, Elena
    ALZHEIMER DISEASE & ASSOCIATED DISORDERS, 2015, 29 (01) : 50 - 54
  • [39] Changes in quality of life after rehabilitation for patients with progressive neurological disorders
    Nordeson, A
    Engström, B
    Norberg, A
    SCANDINAVIAN JOURNAL OF CARING SCIENCES, 1999, 13 (03) : 147 - 152
  • [40] Quality of life of caregivers of end-stage kidney disease patients: Caregivers or care recipients?
    Vovlianou, Stavroula
    Koutlas, Vasilios
    Ikonomou, Margarita
    Vassilikopoulos, Theodore
    Papoulidou, Fani
    Dounousi, Evangelia
    JOURNAL OF RENAL CARE, 2023, 49 (01) : 56 - 72