How is family involved in clinical care and decision-making in intensive care units? A qualitative study

被引:12
作者
Jafarpoor, Hasanali [1 ]
Vasli, Parvaneh [1 ]
Manoochehri, Houman [1 ]
机构
[1] Shahid Beheshti Univ Med Sci, Sch Nursing & Midwifery, Tehran, Iran
关键词
intensive care unit; family-centered care; decision-making; qualitative research; CENTERED CARE; PATIENT; ENGAGEMENT; GUIDELINES; DELIRIUM;
D O I
10.1080/10376178.2020.1801350
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background:Involving family members in patient care is considered as a significant dimension of family-centered care in intensive care units (ICUs). Aims:To describe family members' perceptions and experiences regarding involvement in clinical care delivery and decision-making in ICUs in Iran. Design:A qualitative research method using conventional content analysis. Methods:A total number of 24 participants were selected through purposive sampling method between 2018 and 2019. Each interview also lasted between 30 and 60 min and the inductive data analysis was used. Results:The findings revealed that non-agreed involvement in clinical care delivery and family involvement in decision-making is being implemented on a continuum of paternalistic views. Conclusion:Healthcare providers, particularly nurses, and policy makers can thus exploit these findings to strengthen family involvement in this regard and consequently improve quality of care. Impact statement:A non-agreed approach and paternalistic views along with some barriers can affect family members' involvement in providing clinical care and making decisions in ICUs in Iran.
引用
收藏
页码:215 / 229
页数:15
相关论文
共 42 条
[1]   Attitudes of healthcare providers towards family involvement and presence in adult critical care units in Saudi Arabia: a quantitative study [J].
Al Mutair, Abbas ;
Plummer, Virginia ;
Paul O'Brien, Anthony ;
Clerehan, Rosemary .
JOURNAL OF CLINICAL NURSING, 2014, 23 (5-6) :744-755
[2]   Family-Centered Care As a Western-Centric Model in Developing Countries Luxury Versus Necessity [J].
Al-Motlaq, Mohammad A. ;
Shields, Linda .
HOLISTIC NURSING PRACTICE, 2017, 31 (05) :343-347
[3]   Risk of post-traumatic stress symptoms in family members of intensive care unit patients [J].
Azoulay, E ;
Pochard, F ;
Kentish-Barnes, N ;
Chevret, S ;
Aboab, J ;
Adrie, C ;
Annane, D ;
Bleichner, G ;
Bollaert, PE ;
Darmon, M ;
Fassier, T ;
Galliot, R ;
Garrouste-Orgeas, M ;
Goulenok, C ;
Goldgran-Toledano, D ;
Hayon, J ;
Jourdain, M ;
Kaidomar, M ;
Laplace, C ;
Larché, J ;
Liotier, J ;
Papazian, L ;
Poisson, C ;
Reignier, J ;
Saidi, F ;
Schlemmer, B .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2005, 171 (09) :987-994
[4]   Family-centered theory: Origins, development, barriers, and supports to implementation in rehabilitation medicine [J].
Bamm, Elena L. ;
Rosenbaum, Peter .
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2008, 89 (08) :1618-1624
[5]  
Beck CT., 2013, ESSENTIALS NURSING R
[6]  
Belanger L., 2018, Patient Experience Journal, V5, P56, DOI DOI 10.35680/2372-0247.1250
[7]   Association of Surrogate Decision-making Interventions for Critically Ill Adults With Patient, Family, and Resource Use Outcomes A Systematic Review and Meta-analysis [J].
Bibas, Lior ;
Peretz-Larochelle, Maude ;
Adhikari, Neill K. ;
Goldfarb, Michael J. ;
Luk, Adriana ;
Englesakis, Marina ;
Detsky, Michael E. ;
Lawler, Patrick R. .
JAMA NETWORK OPEN, 2019, 2 (07) :e197229
[8]   Defining Patient and Family Engagement in the Intensive Care Unit [J].
Brown, Samuel M. ;
Rozenblum, Ronen ;
Aboumatar, Hanan ;
Fagan, Maureen B. ;
Milic, Michelle ;
Lee, Barbara Sarnoff ;
Turner, Kathleen ;
Frosch, Dominick L. .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2015, 191 (03) :358-360
[9]   Patient and Family Engagement in the ICU Untapped Opportunities and Underrecognized Challenges [J].
Burns, Karen E. A. ;
Misak, Cheryl ;
Herridge, Margaret ;
Meade, Maureen O. ;
Oczkowski, Simon .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2018, 198 (03) :310-319
[10]   Using Qualitative Research to Inform Development of Professional Guidelines: A Case Study of the Society of Critical Care Medicine Family-Centered Care Guidelines [J].
Coombs, Maureen A. ;
Davidson, Judy E. ;
Nunnally, Mark E. ;
Wickline, Mary A. ;
Curtis, J. Randall .
CRITICAL CARE MEDICINE, 2017, 45 (08) :1352-1358