Content and Quality of Websites for Patients With Chronic Kidney Disease: An Environmental Scan

被引:13
作者
Smekal, Michelle [1 ]
Gil, Sarah [1 ]
Donald, Maoliosa [1 ,2 ]
Beanlands, Heather [3 ]
Straus, Sharon [4 ,5 ]
Herrington, Gwen [6 ]
Sparkes, Dwight [6 ]
Harwood, Lori [7 ]
Tong, Allison [8 ]
Grill, Allan [9 ]
Tu, Karen [9 ]
Waldvogel, Blair [6 ]
Large, Chantel [6 ]
Large, Claire [6 ]
Novak, Marta [10 ]
James, Matthew [1 ,2 ]
Elliott, Meghan [1 ]
Delgado, Maria [6 ]
Brimble, Scott [11 ]
Samuel, Susan [2 ,12 ]
Hemmelgarn, Brenda R. [1 ,2 ]
机构
[1] Univ Calgary, Cumming Sch Med, Dept Med, Calgary, AB, Canada
[2] Univ Calgary, Dept Community Hlth Sci, Calgary, AB, Canada
[3] Ryerson Univ, Daphne Cockwell Sch Nursing, Toronto, ON, Canada
[4] Univ Toronto, Dept Med, Toronto, ON, Canada
[5] St Michaels Hosp, Li Ka Shing Knowledge Inst, Toronto, ON, Canada
[6] Can SOLVE CKD Network, Vancouver, BC, Canada
[7] London Hlth Sci Ctr, London, ON, Canada
[8] Univ Sydney, Sydney Sch Publ Hlth, Sydney, NSW, Australia
[9] Univ Toronto, Dept Family & Amp Community Med, Toronto, ON, Canada
[10] Univ Toronto, Dept Psychiat, Toronto, ON, Canada
[11] McMaster Univ, Dept Med, Hamilton, ON, Canada
[12] Univ Calgary, Dept Pediat, Calgary, AB, Canada
基金
加拿大健康研究院;
关键词
chronic kidney disease; online; internet; websites; self-management; SELF-MANAGEMENT SUPPORT; HEALTH INFORMATION; INTERNET; WEB; DISCERN;
D O I
10.1177/2054358119863091
中图分类号
R5 [内科学]; R69 [泌尿科学(泌尿生殖系疾病)];
学科分类号
1002 ; 100201 ;
摘要
Background: Although numerous websites for patients with chronic kidney disease (CKD) are available, little is known about their content and quality. Objective: To evaluate the quality of CKD websites, and the degree to which they align with information needs identified by patients with CKD. Methods: We identified websites by entering "chronic kidney disease" in 3 search engines: Google.com (with regional variants for Australia, Canada, the United Kingdom, and the United States), Bing.com, and Yahoo.com. We included the first 50 unique English-language sites from each search. We evaluated website content using a 30-point scale comprising 8 priority content domains identified by patients with CKD (understanding CKD, diet, symptoms, medications, mental/physical health, finances, travel, and work/school). We used standardized tools to evaluate usability, reliability, and readability (DISCERN, HONcode, LIDA, Reading Ease, and Reading Grade Level). Two reviewers independently conducted the search, screen, and evaluation. Results: Of the 2093 websites identified, 115 were included. Overall, sites covered a mean (SD) of 29% (17.8) of the CKD content areas. The proportion of sites covering content related to understanding CKD, symptoms, and diet was highest (97%, 80%, and 72%, respectively). The proportion of sites covering travel, finances, and work/school content was lowest (22%, 12%, and 12%, respectively). The mean (SD) scores for DISCERN, LIDA and HONcode were 68% (14.6), 71% (14.4), and 75% (17.2), respectively, considered above average for usability and reliability. The mean (SD) Reading Grade Level was 10.6 (2.8) and Reading Ease was 49.8 (14.4), suggesting poor readability. Conclusions: Although many CKD web sites were of reasonable quality, their readability was poor. Furthermore, most sites covered less than 30% of the content patients identified as important for CKD self-management. These results will inform content gaps in internet-accessible information on CKD self-management that should be addressed by future eHealth web-based tools.
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页数:18
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