Hospice Care for Children With Cancer: Where Do These Children Die?

被引:25
作者
Thienprayoon, Rachel [1 ,2 ]
Lee, Simon C. [3 ,4 ]
Leonard, David [5 ]
Winick, Naomi [5 ,6 ]
机构
[1] Cincinnati Childrens Hosp Med Ctr, Dept Anesthesiol, Cincinnati, OH 45229 USA
[2] Cincinnati Childrens Hosp Med Ctr, Canc & Blood Dis Inst, Cincinnati, OH 45229 USA
[3] Univ Texas SW Med Ctr Dallas, Dept Clin Sci, Dallas, TX 75390 USA
[4] Univ Texas SW Med Ctr Dallas, Harold C Simmons Canc Ctr, Dallas, TX 75390 USA
[5] Univ Texas SW Med Ctr Dallas, Childrens Med Ctr Dallas, Dallas, TX 75390 USA
[6] Univ Texas SW Med Ctr Dallas, Pauline Allen Gill Ctr Canc & Blood Disorders, Dept Pediat, Div Hematol Oncol, Dallas, TX 75390 USA
关键词
pediatric oncology; pediatric palliative medicine; pediatric end of life care; pediatric hospice; OF-LIFE CARE; PALLIATIVE CARE; DEATH; END; LOCATION; HOME; SYMPTOMS; PARENTS; PLACE;
D O I
10.1097/MPH.0000000000000331
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Hospice is an important provider of end of life care; many children who die of cancer enroll in hospice programs. How frequently such children remain in hospice to die at home, or disenroll from hospice and die in the hospital, has not been described. A child's location of death has important implications for quality of life and parental adaptation. This represents a subanalysis of a retrospective study of 202 consecutive oncology patients who died at a single center between January 1, 2006 and December 31, 2010. Of 95 children who enrolled in hospice, 82 had known location of death. Sixty (73%) died at home or an inpatient hospice unit, 15 (18%) died in the oncology unit, 5 (6%) died in the intensive care unit, and 2 (2%) died in the emergency department. The median length of hospice services was 41 days, twice the national median of 21 days reported in adults. One quarter of children disenrolled from hospice care, ultimately dying in an acute care setting. Further studies are warranted to explore the hospice experience in children, and to address modifiable factors that may impact a family's choice to withdraw from hospice care.
引用
收藏
页码:373 / 377
页数:5
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