Perceived well-being and mental health in haemophilia

被引:9
作者
Negri, Luca [1 ]
Buzzi, Andrea [2 ]
Aru, Anna Brigida [3 ]
Cannavo, Antonino [4 ]
Castegnaro, Claudio [2 ]
Fasulo, Maria Rosaria [4 ]
Lassandro, Giuseppe [5 ]
Rocino, Angiola [6 ]
Santoro, Cristina [7 ]
Sottilotta, Gianluca [8 ]
Giordano, Paola [5 ]
Mazzucconi, Maria Gabriella [7 ]
Mura, Rosamaria [3 ]
Peyvandi, Flora [4 ]
Delle Fave, Antonella [1 ]
机构
[1] Univ Milan, Dipartimento Fisiopatol Med Chirurg & Trapianti, Via F Sforza 35, I-20146 Milan, Italy
[2] Fdn Paracelso ONLUS, Milan, Italy
[3] Osped Pediat Microcitem Antonio Cao, SC Oncoematol Pediat & Patol Coagulaz, Cagliari, Italy
[4] Osped Maggiore Policlin, Fdn IRCCS Ca Granda, Angelo Bianchi Bonomi Hemophilia & Thrombosis Ctr, Milan, Italy
[5] Univ Bari Aldo Moro, Sez Pediat, Dipartimento Sci Biomed & Oncol Umana, Bari, Italy
[6] ASL NA1, Osped Ascalesi, Ctr Emofilia & Trombosi, UOC Ematol, Naples, Italy
[7] Univ Roma La Sapienza, Dipartimento Biotecnol Cellulari & Ematol, Rome, Italy
[8] Grande Osped Metropolitano Bianchi Melacrino More, Serv Emostasi & Trombosi, Ctr Emofilia, UOSD Microcitemie, Reggio Di Calabria, Italy
关键词
Haemophilia; mental health; physical health; well-being; flourishing; QUALITY-OF-LIFE; COPING STRATEGIES; NEGATIVE AFFECT; HAPPINESS; IMPACT; SCIENCE; GROWTH; ADULTS; MODEL;
D O I
10.1080/13548506.2020.1717556
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The investigation of mental health among persons with haemophilia is mostly focused on negative and disease-related indicators. Literature however shows that psychosocial resources and optimal daily functioning can co-exist with chronic disease. The Dual Continua Model operationalizes positive mental health as 'flourishing', a condition comprising emotional, psychological, and social well-being dimensions. In the present study physical and mental health were comparatively assessed through positive and negative indicators in adults with haemophilia and a control group. Participants included 84 Italian persons with severe haemophilia (M-age = 43.44; SDage = 13.04) and 164 adults without history of chronic illness (M-age = 40.98; SDage = 12.26), who completed the Short Form Health Survey, the Positive and Negative Affect Schedule, and the Mental Health Continuum Short Form. MANOVA and post-hoc t-tests provided evidence of worse general health, lower negative affect and higher psychological well-being among participants with haemophilia compared with the control group. Moreover, the percentage of flourishing individuals was higher among participants with haemophilia. Results support previous evidence suggesting that a chronic disease does not prevent mental well-being attainment. The identification of assets and strengths allowing people with haemophilia to flourish can be fruitfully used to design resource-centered interventions.
引用
收藏
页码:1062 / 1072
页数:11
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