Persistent Obstructive Sleep Apnea Burden on Family Finances and Quality of Life

被引:9
作者
Bergeron, Mathieu [1 ,2 ]
Ishman, Stacey L. [1 ,3 ,4 ]
机构
[1] Cincinnati Childrens Hosp Med Ctr, Div Pediat Otolaryngol Head & Neck Surg, 3333 Burnet Ave,MLC 2018, Cincinnati, OH 45229 USA
[2] St Justine Hosp, Dept Otolaryngol Head & Neck Surg, Montreal, PQ, Canada
[3] Cincinnati Childrens Hosp Med Ctr, Div Pulm Med, 3333 Burnet Ave,MLC 2018, Cincinnati, OH 45229 USA
[4] Univ Cincinnati, Coll Med, Dept Otolaryngol Head & Neck Surg, Cincinnati, OH USA
关键词
obstructive sleep apnea; persistent; pediatric; infant; OSA; quality of life; family impact; Family Impact Questionnaire; COST; Comprehensive Score for Financial Toxicity; TOXICITY; POLYSOMNOGRAPHY; ENROLLMENT; CHILDREN; IMPACT;
D O I
10.1177/0194599820986566
中图分类号
R76 [耳鼻咽喉科学];
学科分类号
100213 ;
摘要
Objective We previously found that financial concerns negatively affect the quality of life of families of children with persistent obstructive sleep apnea (OSA) after tonsillectomy. The goal is to quantify the financial impact on families of children with persistent OSA and assess contributing factors. Study Design Cross-sectional survey study with comparison group. Setting Upper airway center at a tertiary pediatric hospital. Methods Participants included consecutive children with persistent OSA from September to October 2017. Healthy children seen in a general otolaryngology clinic served as controls. Families of both groups completed the Family Impact Questionnaire and the modified Comprehensive Score for Financial Toxicity (COST). Results Families of the 50 patients (25 study and 25 control) completed the surveys: the mean age was 6.4 years (95% CI, 5.0-7.8), and 19 (38%) were female. There were no differences in age, sex, race, or insurance status between groups (P > .05). The mean apnea-hypopnea index for the study group was 7.9 events/h (range, 5.5-10.3), and 40% (10/25) had Down syndrome. Positive airway pressure and/or oxygen were used by 72% (18/25). The Comprehensive Score for Financial Toxicity for study patients (21.9; 95% CI, 14.8-26.0) was significantly lower than for controls (30.2; 95% CI, 26.6-30.8; P = .003), reflecting elevated financial toxicity. Study families reported greater financial impact on the Family Impact Questionnaire (8.4; 95% CI, 6.1-10.7) versus controls (3.6; 95% CI, 1.8-5.4; P = .002); concerns regarding missed days of work and school were common (30.7%). Conclusion Families of children with persistent OSA reported a high financial burden related to their children's disease and were more likely to report financial toxicity than families of controls. Concern regarding missed work and school associated with appointments and treatment was a significant factor.
引用
收藏
页码:483 / 489
页数:7
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