An Exploration of the Cultural Context of Kinship and Genetics Amongst Arabic-Australians: Implications for Practice

被引：4

作者：

Saleh, Mona ^{[1
,2
]}

Barlow-Stewart, Kristine ^{[1
,3
]}

Meiser, Bettina ^{[4
,5
]}

Kirk, Judy ^{[6
]}

Tucker, Kathy ^{[7
]}

机构：

[1] Royal N Shore Hosp, Ctr Genet Educ, St Leonards, NSW 1590, Australia

[2] Univ New S Wales, Sch Psychiat, Sydney, NSW, Australia

[3] Univ Sydney, Fac Med, Sydney, NSW 2006, Australia

[4] Prince Wales Hosp, Dept Med Oncol, Psychosocial Res Grp, Sydney, NSW, Australia

[5] Univ New S Wales, Prince Wales Clin Sch, Sydney, NSW, Australia

[6] Westmead Hosp, Familial Canc Serv, Sydney, NSW, Australia

[7] Prince Wales Hosp, Hereditary Canc Clin, Sydney, NSW, Australia

来源：

JOURNAL OF GENETIC COUNSELING | 2011年 / 20卷 / 05期

基金：

英国医学研究理事会;

关键词：

Cultural competence; Kinship; Hereditary cancer; Cultural diversity; Genetic services; BRCA2; MUTATIONS; BREAST-CANCER; HIGH-RISK; CONSANGUINITY; INFORMATION; COMPETENCE; STRATEGIES; FAMILIES; LESSONS; CARE;

D O I：

10.1007/s10897-011-9371-z

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

This paper examines the culturally determined attitudes and beliefs about kinship, causation of hereditary cancer and other illnesses and the importance of family history amongst Arabic-Australians. Ethnographic interviews were conducted initially with individuals who had attended a family cancer clinic and subsequently with community members. Our aim was to either verify or challenge the reported findings from the clinic sample. Interviews with 38 participants provided cultural descriptions of hereditary illnesses, including cancer, and their causes. While respondents recognized family history as an important factor that reflects on one's likelihood of successful child-bearing, models of kinship described were not in line with Western concepts. Important issues emerged which need to be recognized as potential barriers to access to genetics services and challenges in this community. These include a lack of awareness of inherited cancer and the impact of consanguinity on the understanding of kinship in this community.

引用

页码：465 / 475

页数：11