Opportunities and Barriers of Telemedicine in Rheumatology: A Participatory, Mixed-Methods Study

被引:26
作者
Muehlensiepen, Felix [1 ,2 ,3 ,4 ]
Knitza, Johannes [4 ,5 ,6 ,7 ]
Marquardt, Wenke [1 ]
May, Susann [2 ]
Krusche, Martin [8 ]
Hueber, Axel [9 ]
Schwarz, Julian [10 ]
Vuillerme, Nicolas [4 ,11 ,12 ,13 ]
Heinze, Martin [2 ,3 ,10 ]
Welcker, Martin [14 ]
机构
[1] KV Consult & Managementgesellschaft mbH, D-14469 Potsdam, Germany
[2] Brandenburg Med Sch Theodor Fontane, Ctr Hlth Serv Res, D-15562 Berlin, Germany
[3] Brandenburg Med Sch Theodor Fontane, Fac Hlth Sci Brandenburg, D-16816 Neuruppin, Germany
[4] Univ Grenoble Alpes, AGEIS, F-38000 Grenoble, France
[5] Friedrich Alexander Univ Erlangen Nurnberg, Dept Internal Med Rheumatol & Immunol 3, D-91054 Erlangen, Germany
[6] Univ Klinikum Erlangen, D-91054 Erlangen, Germany
[7] Friedrich Alexander Univ Erlangen Nurnberg, Deutsch Zentrum Immuntherapie, D-91054 Erlangen, Germany
[8] Univ Med Ctr Hamburg Eppendorf, Dept Internal Med 3, D-20251 Hamburg, Germany
[9] Paracelsus Med Univ, Div Rheumatol, Klinikum Nurnberg, D-90419 Nurnberg, Germany
[10] Brandenburg Med Sch Theodor Fontane, Dept Psychiat & Psychotherapy, Immanuel Klin Rudersdorf, D-15562 Rudersdorf, Germany
[11] Inst Univ France, F-75006 Paris, France
[12] LabCom Telecom4Hlth, Orange Labs, F-38400 Grenoble, France
[13] Univ Grenoble Alpes, CNRS, INRIA, Grenoble INP UGA, F-38400 Grenoble, France
[14] Med Versorgungszentrum Rheumatol Dr M Welcker Gmb, D-82152 Planegg, Germany
关键词
chronic disease; rheumatology; telemedicine; eHealth; mHealth; patient perspective; mixed methods; qualitative research; survey; TELERHEUMATOLOGY; CHALLENGES; ARTHRITIS; PAPER;
D O I
10.3390/ijerph182413127
中图分类号
X [环境科学、安全科学];
学科分类号
08 ; 0830 ;
摘要
Despite all its promises, telemedicine is still not widely implemented in the care of rheumatic and musculoskeletal diseases (RMDs). The aim of this study is to investigate opportunities, barriers, acceptance, and preferences concerning telemedicine among RMD patients and professional stakeholders. From November 2017 to December 2019, a participatory, mixed-methods study was conducted, consisting of (1) expert interviews (n = 27) with RMD patients and professional stakeholders, (2) a national paper-based patient survey (n = 766), and (3) focus groups (n = 2) with patient representatives and rheumatologists. The qualitative findings indicate that patients equate personal contact with physical face-to-face contact, which could be reduced by implementing telemedicine, thus negatively influencing the patient-doctor relationship. Correspondingly "no personal contact with the doctor" is the main reason (64%) why 38% of the surveyed patients refuse to try telemedicine. Professional stakeholders expect telemedicine to contribute to the effective allocation of scarce resources in rheumatology care. The main barriers reported by stakeholders were the scarcity of time resources in RMD care, the absence of physical examinations, and organizational challenges associated with the implementation of telemedicine in RMD care. While the exact integration of telemedicine into routine care has yet to be found, the consequences on the patient-physician relationship must be permanently considered.
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页数:18
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