Symptom monitoring in cancer and fully automated advice on supportive care: Patients' perspectives on self-management strategies and the eHealth self-management application Oncokompas

被引：8

作者：

Schuit, Anouk S. ^{[1
,2
]}

van Zwieten, Valesca ^{[3
]}

Holtmaat, Karen ^{[1
,2
]}

Cuijpers, Pim ^{[1
]}

Eerenstein, Simone E. J. ^{[2
,3
]}

Leemans, C. Rene ^{[2
,3
]}

Vergeer, Marije R. ^{[2
,4
]}

Voortman, Jens ^{[2
,5
]}

Karagozoglu, Hakki ^{[2
,6
]}

van Weert, Stijn ^{[2
,3
]}

Korte, Mira ^{[7
]}

Frambach, Ruud ^{[8
]}

Fleuren, Margot ^{[1
]}

Hendrickx, Jan-Jaap ^{[2
,3
]}

Verdonck-de Leeuw, Irma M. ^{[1
,2
,3
]}

机构：

[1] Amsterdam Publ Hlth Res Inst, Fac Behav & Movement Sci, Dept Clin Neuro & Dev Psychol, Amsterdam, Netherlands

[2] Vrije Univ Amsterdam, Canc Ctr Amsterdam CCA, Amsterdam UMC, Amsterdam, Netherlands

[3] Vrije Univ Amsterdam, Dept Otolaryngol Head & Neck Surg, Canc Ctr Amsterdam, Amsterdam UMC, Amsterdam, Netherlands

[4] Vrije Univ Amsterdam, Dept Radiat Oncol, Canc Ctr Amsterdam, Amsterdam UMC, Amsterdam, Netherlands

[5] Vrije Univ Amsterdam, Dept Med Oncol, Canc Ctr Amsterdam, Amsterdam UMC, Amsterdam, Netherlands

[6] Vrije Univ Amsterdam, Acad Ctr Dent Amsterdam ACTA, Dept Oral & Maxillofacial Surg Pathol, Canc Ctr Amsterdam,Amsterdam UMC, Amsterdam, Netherlands

[7] Vrije Univ Amsterdam, Dept Strategy & Innovat, Canc Ctr Amsterdam, Amsterdam UMC, Amsterdam, Netherlands

[8] Vrije Univ Amsterdam, Sch Business & Econ, Dept Mkt, Amsterdam, Netherlands

来源：

EUROPEAN JOURNAL OF CANCER CARE | 2021年 / 30卷 / 06期

关键词：

cancer; eHealth; evaluation of care; head and neck cancer; self-management; supportive care; SURVIVORS; INTERVENTIONS; FRAMEWORK; IMPROVE;

D O I：

10.1111/ecc.13497

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Objective The web-based application Oncokompas was developed to support cancer patients to self-manage their symptoms. This qualitative study was conducted to obtain insight in patients' self-management strategies to cope with cancer and their experiences with Oncokompas as a fully automated behavioural intervention technology. Methods Data were collected from semi-structured interviews with 22 participants (10 head and neck cancer survivors and 12 incurably ill patients). Interview questions were about self-management strategies and experiences with Oncokompas. Interviews were audio-recorded, transcribed verbatim and analysed using thematic analysis. Results Participants applied several self-management strategies, among which trying to stay in control and make the best of their situation. They described Oncokompas' added value: being able to monitor symptoms and having access to a personal online library. Main reasons for not using Oncokompas were concentration problems, lack of time or having technical issues. Recommendations were made for further development of Oncokompas, relating to its content, technical and functional aspects. Conclusions Survivors and incurably ill patients use various self-management strategies to cope with cancer. The objectives of self-management interventions as Oncokompas correspond well with these strategies: taking a certain responsibility for your well-being and being in charge of your life as long as possible by obtaining automated information (24/7) on symptoms and tailored supportive care options.

引用

页数：13

共 34 条

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