Stigma of Sickle Cell Disease: A Systematic Review

被引：100
作者：
Bulgin, Dominique [1 ]
Tanabe, Paula [1 ]
Jenerette, Coretta [2 ]
机构：
[1] Duke Univ, Sch Nursing, 307 Trent Dr, Durham, NC 27710 USA
[2] Univ N Carolina, Sch Nursing, Chapel Hill, NC 27515 USA
来源：
ISSUES IN MENTAL HEALTH NURSING | 2018年 / 39卷 / 08期
基金：
美国国家卫生研究院;
关键词：
PERCEIVED DISCRIMINATION; HEALTH-CARE; SELF-MANAGEMENT; YOUNG-ADULTS; PAIN; RACE; DISCLOSURE; INTERSECTIONALITY; ASSOCIATION; EXPERIENCES;
D O I：
10.1080/01612840.2018.1443530
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.
引用
收藏
页码：675 / 686
页数：12
相关论文
共 57 条
  • [1] Health related quality of life and perception of stigmatisation in adolescents living with sickle cell disease in Nigeria: A cross sectional study
    Adeyemo, Titilope A.
    Ojewunmi, Oyesola O.
    Diaku-Akinwumi, Ijeoma N.
    Ayinde, Oluwaseyi C.
    Akanmu, Alani S.
    [J]. PEDIATRIC BLOOD & CANCER, 2015, 62 (07) : 1245 - 1251
  • [2] [Anonymous], SICKL CELL DIS DAT S
  • [3] [Anonymous], LIVED EXPERIENCE YOU
  • [4] [Anonymous], 1986, TOUCHSTONE BOOK
  • [5] Incorporating intersectionality theory into population health research methodology: Challenges and the potential to advance health equity
    Bauer, Greta R.
    [J]. SOCIAL SCIENCE & MEDICINE, 2014, 110 : 10 - 17
  • [6] The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study
    Bediako, Shawn M.
    Lanzkron, Sophie
    Diener-West, Marie
    Onojobi, Gladys
    Beach, Mary C.
    Haywood, Carlton, Jr.
    [J]. JOURNAL OF HEALTH PSYCHOLOGY, 2016, 21 (05) : 808 - 820
  • [7] Race and social attitudes about sickle cell disease
    Bediako, Shawn M.
    Moffitt, Kimberly R.
    [J]. ETHNICITY & HEALTH, 2011, 16 (4-5) : 423 - 429
  • [8] Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale
    Berger, BE
    Ferrans, CE
    Lashley, FR
    [J]. RESEARCH IN NURSING & HEALTH, 2001, 24 (06) : 518 - 529
  • [9] Increased rates of body dissatisfaction, depressive symptoms, and suicide attempts in Jamaican teens with sickle cell disease
    Bhatt-Poulose, Komal
    James, Kenneth
    Reid, Marvin
    Harrison, Abigail
    Asnani, Monika
    [J]. PEDIATRIC BLOOD & CANCER, 2016, 63 (12) : 2159 - 2166
  • [10] Stigma and illness uncertainty: adding to the burden of sickle cell disease
    Blake, Alphanso
    Asnani, Vikram
    Leger, Robin R.
    Harris, June
    Odesina, Victoria
    Hemmings, Daileann L.
    Morris, Denise A.
    Knight-Madden, Jennifer
    Wagner, Linda
    Asnani, Monika Rani
    [J]. HEMATOLOGY, 2018, 23 (02) : 122 - 130
123456