Stigma of Sickle Cell Disease: A Systematic Review

被引:113
作者
Bulgin, Dominique [1 ]
Tanabe, Paula [1 ]
Jenerette, Coretta [2 ]
机构
[1] Duke Univ, Sch Nursing, 307 Trent Dr, Durham, NC 27710 USA
[2] Univ N Carolina, Sch Nursing, Chapel Hill, NC 27515 USA
基金
美国国家卫生研究院;
关键词
PERCEIVED DISCRIMINATION; HEALTH-CARE; SELF-MANAGEMENT; YOUNG-ADULTS; PAIN; RACE; DISCLOSURE; INTERSECTIONALITY; ASSOCIATION; EXPERIENCES;
D O I
10.1080/01612840.2018.1443530
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.
引用
收藏
页码:675 / 686
页数:12
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