Congenital thumb anomalies and the consequences for daily life: patients' long-term experience after corrective surgery. A qualitative study

被引:8
作者
Carlsson, I. K. [1 ]
Dahlin, L. B. [1 ]
Rosberg, H. -E. [1 ]
机构
[1] Lund Univ, Skane Univ Hosp, Dept Translat Med Hand Surg, S-20502 Malmo, Sweden
基金
英国医学研究理事会;
关键词
Thumb hypoplasia; aplasia; thumb duplication; pollicisation; hand disfigurement; adaptation; qualitative research; VISIBLE DIFFERENCE; HAND DIFFERENCES; PINCH STRENGTH; CHILDREN; VALIDITY; RELIABILITY; INJURY; POLLICIZATION; APLASIA; SWEDEN;
D O I
10.1080/09638288.2016.1243159
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose: The aim of the study was to explore patients' long-term experience of a congenital hand problem, and the consequences for daily life.Method: Fifteen participants with a median age 24years (17-55years), born with thumb hypoplasia/aplasia or thumb duplication were interviewed using a semi-structured interview guide. The interviews were subjected to qualitative content analysis.Results: Although the mobility and strength in the thumb/hand(s) varied within the group, hand function was generally described as good. Compensatory strategies were used to overcome practical obstacles. The emotional reactions to being visibly different from peers in early life varied from total acceptance and a sense of pride in being special, to deep distress and social withdrawal. Support from parents, teachers and others was important in facing emotional challenges and practical consequences.Conclusion: The present study highlights the importance of healthcare professionals addressing appearance-related concerns which may have long-term emotional and social consequences for patients born with a thumb anomaly. Implications for RehabilitationAppearance-related concerns and need for emotional support should be fully considered throughout the rehabilitation process to prevent distress and social withdrawal.Effective problem-solving strategies, such as compensation, change in occupational performance and support from others may reduce activity limitations and participation restriction.
引用
收藏
页码:69 / 75
页数:7
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