Functional Priorities in Persons with Spinal Cord Injury: Using Discrete Choice Experiments To Determine Preferences

被引:92
作者
Lo, Charles [1 ]
Tran, Yvonne [1 ]
Anderson, Kim [2 ]
Craig, Ashley [1 ]
Middleton, James [1 ]
机构
[1] Univ Sydney, Kolling Inst, Sydney Med Sch Northern, John Walsh Ctr Rehabil Res, Sydney, NSW, Australia
[2] Univ Miami, Lois Pope Life Ctr, Dept Neurol Surg, Dept Educ,Miami Project Cure Paralysis, Miami, FL USA
关键词
discrete choice experiments; priority functions; QOL; SCI; QUALITY-OF-LIFE; STRUCTURED PROCESS; NERVE TRANSFER; HEALTH-CARE; UPPER-LIMB; INDIVIDUALS; TETRAPLEGIA; PEOPLE; REHABILITATION; PARTICIPATION;
D O I
10.1089/neu.2016.4423
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
Major goals of rehabilitation and health interventions in people with spinal cord injury (SCI) are to improve functional independence, increase social participation, and enhance quality of life (QOL). Determining functional areas perceived by consumers as most important can assist in research prioritization, planning for delivery of health services, and policy development. Five high priority areas of functioning for the SCI population (arm/hand use, walking, bladder/bowel control, sexual function, and relief of pain) were chosen to determine the preferences for these five attributes. A discrete choice experiment was conducted involving 151 persons with SCI sampled from Australia and the United States of America. Consistent with prior research, arm/hand function had the highest preference, with odds ratios of subjects being 44-76% more likely to choose arm/hand function over the other four functions. Preference for normal arm/hand function was found to be significantly more preferred by the group with paraplegia compared with those with tetraplegia; that is, retaining and not trading off existing arm/hand function for other improved functions. There were no significant differences found in preferences between bladder/bowel function and walking or elimination of pain, although walking was preferred in earlier (<= 10) post-injury years and pain amelioration became more important with a longer duration (>10 years) post-injury. Sexual function had the lowest preference when traded against the other four functions. Understanding the functional preferences of persons with SCI will help to inform future research design, as well as enabling successful translation of research into practice and health policy, meeting the needs of people with SCI.
引用
收藏
页码:1958 / 1968
页数:11
相关论文
共 50 条
  • [31] Spinal cord injury rehabilitation research: patient priorities, current deficiencies and potential directions
    Hammell, Karen R. Whalley
    [J]. DISABILITY AND REHABILITATION, 2010, 32 (14) : 1209 - 1218
  • [32] EXPLORATION OF QUALITY OF LIFE GOALS IN REHABILITATION OF PERSONS AFTER SPINAL CORD INJURY
    Toth, Katalin
    Putz, Miklos
    Kullmann, Lajos
    [J]. IDEGGYOGYASZATI SZEMLE-CLINICAL NEUROSCIENCE, 2013, 66 (7-8): : 242 - 250
  • [33] Recovery of Life Satisfaction in Persons with Spinal Cord Injury During Inpatient Rehabilitation
    van Koppenhagen, Casper F.
    Post, Marcel W.
    van der Woude, Luc H.
    de Groot, Sonja
    de Witte, Luc P.
    van Asbeck, Floris W.
    van den Heuvel, Wim
    Lindeman, Eline
    [J]. AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION, 2009, 88 (11) : 887 - 895
  • [34] Lifetime Prevalence of Chronic Health Conditions Among Persons With Spinal Cord Injury
    Saunders, Lee L.
    Clarke, Alexander
    Tate, Denise G.
    Forchheimer, Martin
    Krause, James S.
    [J]. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2015, 96 (04): : 673 - 679
  • [35] Investigation of Factors Associated With Manual Wheelchair Mobility in Persons With Spinal Cord Injury
    Oyster, Michelle L.
    Karmarkar, Amol M.
    Patrick, Mary
    Read, Mary Schmidt
    Nicolini, Lori
    Boninger, Michael L.
    [J]. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2011, 92 (03): : 484 - 490
  • [36] Implementing volunteer peer mentoring as a supplement to professional efforts in primary rehabilitation of persons with spinal cord injury
    Hoffman, Dorthe D.
    Sundby, Joan
    Biering-Sorensen, Fin
    Kasch, Helge
    [J]. SPINAL CORD, 2019, 57 (10) : 881 - 889
  • [37] Validation of the Reintegration to Normal Living Index for Community-Dwelling Persons With Chronic Spinal Cord Injury
    Hitzig, Sander L.
    Escobar, E. Manolo Romero
    Noreau, Luc
    Craven, B. Catharine
    [J]. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2012, 93 (01): : 108 - 114
  • [38] Comparison of Life Satisfaction in Persons With Spinal Cord Injury Living in 22 Countries With Different Economic Status
    Tasiemski, Tomasz
    Kujawa, Jolanta
    Tederko, Piotr
    Rubinelli, Sara
    Middleton, James W.
    Craig, Ashley
    Post, Marcel W. M.
    [J]. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2022, 103 (07): : 1285 - 1293
  • [39] Correlates and determinants of physical activity in persons with spinal cord injury: A review using the International Classification of Functioning, Disability and Health as reference framework
    Fekete, Christine
    Rauch, Alexandra
    [J]. DISABILITY AND HEALTH JOURNAL, 2012, 5 (03) : 140 - 150
  • [40] SECONDARY HEALTH CONDITIONS AND QUALITY OF LIFE IN PERSONS LIVING WITH SPINAL CORD INJURY FOR AT LEAST TEN YEARS
    Adriaansen, Jacinthe J. E.
    Ruijs, Laura E. M.
    van Koppenhagen, Casper F.
    van Asbeck, Floris W. A.
    Snoek, Govert J.
    van Kuppevelt, Dirk
    Visser-Meily, Johanna M. A.
    Post, Marcel W. M.
    [J]. JOURNAL OF REHABILITATION MEDICINE, 2016, 48 (10) : 853 - 860