The OneFlorida Data Trust: a centralized, translational research data infrastructure of statewide scope

被引：36

作者：

Hogan, William R. ^{[1
]}

Shenkman, Elizabeth A. ^{[1
]}

Robinson, Temple ^{[2
]}

Carasquillo, Olveen ^{[3
]}

Robinson, Patricia S. ^{[4
]}

Essner, Rebecca Z. ^{[4
]}

Bian, Jiang ^{[1
]}

Lipori, Gigi ^{[5
]}

Harle, Christopher ^{[1
,5
]}

Magoc, Tanja ^{[5
]}

Manini, Lizabeth ^{[1
]}

Mendoza, Tona ^{[1
]}

White, Sonya ^{[1
]}

Loiacono, Alex ^{[1
]}

Hall, Jackie ^{[1
]}

Nelson, Dave ^{[5
]}

机构：

[1] Univ Florida, Dept Hlth Outcomes & Biomed Informat, Gainesville, FL USA

[2] Bond Community Hlth Ctr, Tallahassee, FL USA

[3] Univ Miami, Dept Med, Coral Gables, FL USA

[4] AdventHealth, Res Inst, Orlando, FL USA

[5] UF Hlth, Gainesville, FL USA

来源：

JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION | 2022年 / 29卷 / 04期

关键词：

Clinical Data Research Network; data warehouse; data quality; data management; data analysis; FLORIDA;

D O I：

10.1093/jamia/ocab221

中图分类号：

TP [自动化技术、计算机技术];

学科分类号：

0812 ;

摘要：

The OneFlorida Data Trust is a centralized research patient data repository created and managed by the OneFlorida Clinical Research Consortium ("OneFlorida"). It comprises structured electronic health record (EHR), administrative claims, tumor registry, death, and other data on 17.2 million individuals who received healthcare in Florida between January 2012 and the present. Ten healthcare systems in Miami, Orlando, Tampa, Jacksonville, Tallahassee, Gainesville, and rural areas of Florida contribute EHR data, covering the major metropolitan regions in Florida. Deduplication of patients is accomplished via privacy-preserving entity resolution (precision 0.97-0.99, recall 0.75), thereby linking patients' EHR, claims, and death data. Another unique feature is the establishment of mother-baby relationships via Florida vital statistics data. Research usage has been significant, including major studies launched in the National Patient-Centered Clinical Research Network ("PCORnet"), where OneFlorida is 1 of 9 clinical research networks. The Data Trust's robust, centralized, statewide data are a valuable and relatively unique research resource.

引用

页码：686 / 693

页数：8

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