Family caregiving for older Aboriginal people in urban Australia: Disclosing worlds of meaning in the dementia experience

被引:9
作者
Arkles, Rachelle [1 ]
Jankelson, Claire [2 ]
Radford, Kylie [3 ]
Pulver, Lisa Jackson [4 ]
机构
[1] Western Sydney Univ, Translat Hlth Res Inst, Sydney, NSW, Australia
[2] Macquarie Univ, Macquarie Grad Sch Management, Sydney, NSW, Australia
[3] Univ New South Wales, Sch Med Sci, Neurosci Res Australia, Sydney, NSW, Australia
[4] Western Sydney Univ, Sch Med, Sydney, NSW, Australia
来源
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE | 2020年 / 19卷 / 02期
关键词
dementia; ageing; dementia caregiving experiences; carers; Aboriginal and Torres Strait Islander carers; Aboriginal health and ageing; existential; hermeneutic; NORTHERN-TERRITORY; HEALTH; WELL; CARE; PREVALENCE; NEED;
D O I
10.1177/1471301218776761
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Dementia in Australia's Aboriginal and Torres Strait Islander population is an area of significant health and community concern. In this article, we use a hermeneutic mode of interpretation to deepen understanding of experience and meaning in dementia for family carers of older Aboriginal people in urban Australia. Specifically, we draw from the hermeneutic concept of "world disclosure" to illuminate the dementia experience in three ways: through an artwork of the brain and dementia; through concrete description of the lived relation of caregiving; and through an epochal perspective on the significance of contemporary caregiving in dementia. Using narrative and visual knowledge, this three-fold approach brings to the forefront the importance of ontological and existential meanings which resonate for Aboriginal families in the dementia caregiving experience.
引用
收藏
页码:397 / 415
页数:19
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