Challenges of Cognitive Interviewing in Sensitive Health Topic Research

被引:6
作者
Arthur, Elizabeth K. [1 ,2 ]
Menon, Usha [3 ]
Browning, Kristine [4 ]
Overcash, Janine [4 ]
Wills, Celia E. [5 ]
机构
[1] Ohio State Univ, Comprehens Canc Ctr, Arthur G James Canc Hosp, 460 W 10th Ave,Rm B160, Columbus, OH 43210 USA
[2] Ohio State Univ, Richard J Solove Res Inst, 460 W 10th Ave,Rm B160, Columbus, OH 43210 USA
[3] Univ S Florida, Coll Nursing, Tampa, FL 33620 USA
[4] Ohio State Univ, Coll Nursing, Clin Nursing, Columbus, OH 43210 USA
[5] Ohio State Univ, Coll Nursing, Columbus, OH 43210 USA
关键词
cognitive interviewing; patient-reported outcomes; scale development; sensitive topics; sexual health; PATIENT-REPORTED OUTCOMES; PROMIS(R) SEXUAL FUNCTION; SATISFACTION MEASURES;
D O I
10.1097/NNR.0000000000000530
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Background Cognitive interviewing is a qualitative methodology for generating valid, reliable patient-centered outcome measures. There are challenges inherent in research on sensitive topics that require thoughtful approach by the scientist for data collection methods, analysis, and interpretation. Objective The purpose of this article is to provide principles of cognitive interviewing for sensitive health topics. Methods We review the challenges inherent in cognitive interviewing for sensitive topics scale development. We illustrate adaptations to general cognitive interviewing for sensitive topics through the presentation and analysis of a research exemplar. Results Researchers must consider threats to quality of sensitive topic data collection and potential harms to participants and researchers. We provide specific examples of how these risks were mitigated in a sensitive topic scale development study. Discussion Unique challenges of cognitive interviewing for sensitive health topics can be addressed with a well-planned data collection strategy, anticipating participant safety concerns, and consideration to researcher well-being.
引用
收藏
页码:376 / 382
页数:7
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