The Types and Functions of Social Supports Used by Parents Caring for a Child With Autism Spectrum Disorder

被引:35
作者
Shepherd, Daniel [1 ,2 ]
Goedeke, Sonja [1 ,2 ]
Landon, Jason [1 ,2 ]
Meads, Jake [1 ,2 ]
机构
[1] Auckland Univ Technol, Sch Publ Hlth & Psychosocial Studies, Auckland, New Zealand
[2] Auckland Univ Technol, Dept Psychol, Private Bag 92006, Auckland 1142, New Zealand
关键词
Autism; ASD; Parenting stress; Social support; Informal support; Formal support; Social media; CARE-RELATED STRESS; MENTAL-HEALTH; BEHAVIORAL-PROBLEMS; MOTHERS; ADULTS; FAMILY; ASSOCIATIONS; SYMPTOMS; TODDLERS; FATHERS;
D O I
10.1007/s10803-019-04359-5
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
The challenges faced by parents caring for a child with Autism Spectrum Disorder (ASD) can amplify parenting stress, though the impacts of these challenges can be alleviated by social supports. A sample of 674 parent volunteers completed a survey probing the types of social supports currently being used, what function (i.e., tangible, emotional, financial, informational) they judged them to perform, and how each of the utilised supports reduced parenting stress and was considered helpful. Results indicated that informal social supports and social media were perceived as more helpful than formal supports, which were typically perceived in a neutral manner by parents. Overall, the study indicates that addressing the support needs of parents of a child with ASD remains a priority.
引用
收藏
页码:1337 / 1352
页数:16
相关论文
共 50 条
[1]   Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups [J].
Abel, Susan ;
Machin, Tanya ;
Brownlow, Charlotte .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2019, 61 :10-21
[2]   Older Adults: The "Panini Sandwich" Generation [J].
Abramson, Tobi A. .
CLINICAL GERONTOLOGIST, 2015, 38 (04) :251-267
[3]   Concerns of parents and teachers of children with autism in elementary school [J].
Azad, Gazi ;
Mandell, David S. .
AUTISM, 2016, 20 (04) :435-441
[4]   Paternal versus maternal coping styles with child diagnosis of developmental delay [J].
Barak-Levy, Yael ;
Atzaba-Poria, Na'ama .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2013, 34 (06) :2040-2046
[5]   Sex Differences in the Timing of Identification Among Children and Adults with Autism Spectrum Disorders [J].
Begeer, Sander ;
Mandell, David ;
Wijnker-Holmes, Bernadette ;
Venderbosch, Stance ;
Rem, Dorien ;
Stekelenburg, Fred ;
Koot, Hans M. .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2013, 43 (05) :1151-1156
[6]   Network Characteristics, Perceived Social Support, and Psychological Adjustment in Mothers of Children with Autism Spectrum Disorder [J].
Benson, Paul R. .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2012, 42 (12) :2597-2610
[7]  
Boyd BA., 2002, Focus on autism and other developmental disabilities, V17, P208, DOI [10.1177/10883576020170040301, DOI 10.1177/10883576020170040301]
[8]   Mothers supporting children with autistic spectrum disorders - Social support, mental health status and satisfaction with services [J].
Bromley, J ;
Hare, DJ ;
Davison, K ;
Emerson, E .
AUTISM, 2004, 8 (04) :409-423
[9]   Caregiver Burden as People With Autism Spectrum Disorder and Attention-Deficit/Hyperactivity Disorder Transition into Adolescence and Adulthood in the United Kingdom [J].
Cadman, Tim ;
Eklund, Hanna ;
Howley, Deirdre ;
Hayward, Hannah ;
Clarke, Hanna ;
Findon, James ;
Xenitidis, Kiriakos ;
Murphy, Declan ;
Asherson, Philip ;
Glaser, Karen .
JOURNAL OF THE AMERICAN ACADEMY OF CHILD AND ADOLESCENT PSYCHIATRY, 2012, 51 (09) :879-888
[10]   A review of declared factors identified by parents of children with autism spectrum disorders (ASD) in making intervention decisions [J].
Carlon, Sarah ;
Carter, Mark ;
Stephenson, Jennifer .
RESEARCH IN AUTISM SPECTRUM DISORDERS, 2013, 7 (02) :369-381