In Defense of Broad Consent

被引:61
作者
Helgesson, Gert [1 ]
机构
[1] Karolinska Inst, Stockholm Ctr Healthcare Eth, Stockholm, Sweden
关键词
BIOBANK RESEARCH; ANONYMIZATION; NORMS; LEGAL;
D O I
10.1017/S096318011100048X
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Proper procedures for informed consent are widely recognized as an ethical requirement for biomedical research involving human beings, in particular as a means to respect the autonomy and personal integrity of potential and actual research participants. © Copyright Cambridge University Press 2011.
引用
收藏
页码:40 / 50
页数:11
相关论文
共 24 条
[1]  
[Anonymous], ETHICAL ISSUES GOVER
[2]   Coding and consent: Moral challenges of the database project in Iceland [J].
Arnason, V .
BIOETHICS, 2004, 18 (01) :27-49
[3]  
Beauchamp TL, 1979, Principles of Biomedical Ethics
[4]   Trends in ethical and legal frameworks for the use of human biobanks [J].
Cambon-Thomsen, A. ;
Rial-Sebbag, E. ;
Knoppers, B. M. .
EUROPEAN RESPIRATORY JOURNAL, 2007, 30 (02) :373-382
[5]  
Caulfield Timothy., 2007, KINGS LJ, V18, P209, DOI [10.1080/09615768.2007.11427674, DOI 10.1080/09615768.2007.11427674]
[6]  
DILLNER J, 1994, CANCER RES, V54, P134
[7]   Consent and anonymization in research involving biobanks - Differing terms and norms present serious barriers to an international framework [J].
Elger, BS ;
Caplan, AL .
EMBO REPORTS, 2006, 7 (07) :661-666
[8]   Potential harms, anonymization, and the right to withdraw consent to biobank research [J].
Eriksson, S ;
Helgesson, G .
EUROPEAN JOURNAL OF HUMAN GENETICS, 2005, 13 (09) :1071-1076
[9]  
Faden RR., 1986, A history and theory of informed consent
[10]   Ethical, Legal, and Social Implications of Biobanks for Genetics Research [J].
Haga, Susanne B. ;
Beskow, Laura M. .
GENETIC DISSECTION OF COMPLEX TRAITS, 2ND EDITION, 2008, 60 :505-544