In Defense of Broad Consent

被引：60
作者：
Helgesson, Gert [1 ]
机构：
[1] Karolinska Inst, Stockholm Ctr Healthcare Eth, Stockholm, Sweden
来源：
CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS | 2012年 / 21卷 / 01期
关键词：
BIOBANK RESEARCH; ANONYMIZATION; NORMS; LEGAL;
D O I：
10.1017/S096318011100048X
中图分类号：
R19 [保健组织与事业（卫生事业管理）];
学科分类号：
摘要：
Proper procedures for informed consent are widely recognized as an ethical requirement for biomedical research involving human beings, in particular as a means to respect the autonomy and personal integrity of potential and actual research participants. © Copyright Cambridge University Press 2011.
引用
收藏
页码：40 / 50
页数：11
相关论文
共 24 条
  • [1] [Anonymous], ETHICAL ISSUES GOVER
  • [2] Coding and consent: Moral challenges of the database project in Iceland
    Arnason, V
    [J]. BIOETHICS, 2004, 18 (01) : 27 - 49
  • [3] Beauchamp TL, 1979, Principles of Biomedical Ethics
  • [4] Trends in ethical and legal frameworks for the use of human biobanks
    Cambon-Thomsen, A.
    Rial-Sebbag, E.
    Knoppers, B. M.
    [J]. EUROPEAN RESPIRATORY JOURNAL, 2007, 30 (02) : 373 - 382
  • [5] Caulfield Timothy., 2007, KINGS LJ, V18, P209, DOI [10.1080/09615768.2007.11427674, DOI 10.1080/09615768.2007.11427674]
  • [6] DILLNER J, 1994, CANCER RES, V54, P134
  • [7] Consent and anonymization in research involving biobanks - Differing terms and norms present serious barriers to an international framework
    Elger, BS
    Caplan, AL
    [J]. EMBO REPORTS, 2006, 7 (07) : 661 - 666
  • [8] Potential harms, anonymization, and the right to withdraw consent to biobank research
    Eriksson, S
    Helgesson, G
    [J]. EUROPEAN JOURNAL OF HUMAN GENETICS, 2005, 13 (09) : 1071 - 1076
  • [9] Faden RR., 1986, A history and theory of informed consent
  • [10] Ethical, Legal, and Social Implications of Biobanks for Genetics Research
    Haga, Susanne B.
    Beskow, Laura M.
    [J]. GENETIC DISSECTION OF COMPLEX TRAITS, 2ND EDITION, 2008, 60 : 505 - 544
123