Readiness of independency in health care management for young adults with cerebral palsy

被引:0
|
作者
Rozkalne, Zane [1 ,2 ]
Mukans, Maksims [1 ]
Vetra, Anita [1 ,2 ]
机构
[1] Riga Stradins Univ, Riga, Latvia
[2] Childrens Clin Univ Hosp, Riga, Latvia
来源
7TH INTERNATIONAL INTERDISCIPLINARY SCIENTIFIC CONFERENCE SOCIETY, HEALTH, WELFARE | 2019年 / 68卷
关键词
cerebral palsy; transition age; health care; young adult; TRANSITION READINESS; CHRONIC ILLNESS; NEEDS; MUSCULOSKELETAL; CHILDREN; PEOPLE; ADOLESCENTS; RELIABILITY; EXPERIENCES; SYSTEM;
D O I
10.1051/shsconf/20196802008
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
Transition from paediatric to adult health care services is a crucial process for young adults with long-term medical conditions and well organized and coordinated transition process has been strongly highlighted. The aims of this research were to assess the young adults with cerebral palsy overall readiness for adult life, the independency in health care management and independency impacting factors. Eighty young adults (age range 16-21 years) with CP and normal or slightly decreased mental function participated. There were done "face-to-face" structured interviews using the Rotterdam Transition Profile and the Transition Readiness Assessment Questionnaire also the characteristics of participants were obtained. It was revealed that young adults with cerebral palsy show low levels of participation in almost all domains of transition to adult life, the level of attendance of rehabilitation services is not sufficient, and the level of independency for young adults with CP in health care management is between phases of preparation and action. The most impacting factor for independency in health care management was found to be the cognitive status.
引用
收藏
页数:13
相关论文
共 50 条
  • [1] The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult's Health Care and Rehabilitation
    Jeglinsky-Kankainen, Ira
    Vanska, Nea
    Kinnunen, Anu
    Satila, Heli
    Sipari, Salla
    DISABILITIES, 2025, 5 (01):
  • [2] Health Care Transition Experiences of Young Adults With Cerebral Palsy
    Carroll, Ellen McLaughlin
    JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2015, 30 (05): : E157 - E164
  • [3] Ethics in Health Care Services for Young Persons With Neurodevelopmental Disabilities: A Focus on Cerebral Palsy
    Lariviere-Bastien, Danae
    Racine, Eric
    JOURNAL OF CHILD NEUROLOGY, 2011, 26 (10) : 1221 - 1229
  • [4] The Health and Quality of Life Outcomes Among Youth and Young Adults With Cerebral Palsy
    Young, Nancy L.
    Rochon, Trista G.
    McCormick, Anna
    Law, Mary
    Wedge, John H.
    Fehlings, Darcy
    ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2010, 91 (01): : 143 - 148
  • [5] Exploring the transition experiences of young adults with cerebral palsy
    Clough, Isabelle
    Culnane, Evelyn
    Loftus, Hayley
    CHILD CARE HEALTH AND DEVELOPMENT, 2024, 50 (01)
  • [6] Quality of life in young adults with cerebral palsy
    Jiang, Benran
    Walstab, Janet
    Reid, Susan M.
    Davis, Elise
    Reddihough, Dinah
    DISABILITY AND HEALTH JOURNAL, 2016, 9 (04) : 673 - 681
  • [7] Experiences of young adults with cerebral palsy in pediatric care transitioning to adult care
    Sarmiento, Cristina A.
    Wyrwa, Jordan M.
    Glaros, Chloe
    Holliman, Brooke Dorsey
    Brenner, Lisa A.
    DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2025, 67 (01) : 99 - 110
  • [8] Experienced Problems of Young Adults With Cerebral Palsy: Targets for Rehabilitation Care
    Nieuwenhuijsen, Channah
    Donkervoort, Mireille
    Nieuwstraten, Wilbert
    Stam, Henk J.
    Roebroeck, Marij E.
    ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2009, 90 (11): : 1891 - 1897
  • [9] Health literacy in adolescents and young adults with cerebral palsy: a mixed methods systematic review
    Ding, Jacqueline Y.
    Cleary, Stacey L.
    Morgan, Prue E.
    DISABILITY AND REHABILITATION, 2024, 46 (24) : 5717 - 5729
  • [10] EXPLORING SOCIAL PARTICIPATION IN YOUNG ADULTS WITH CEREBRAL PALSY
    Jacobson, Dan N. O.
    Lowing, Kristina
    Hjalmarsson, Emma
    Tedroff, Krishna
    JOURNAL OF REHABILITATION MEDICINE, 2019, 51 (03) : 167 - 174