Timing It Right: A conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home

被引:282
作者
Cameron, Jill I. [1 ,2 ]
Gignac, Monique A. M. [3 ]
机构
[1] Univ Toronto, Dept Occupat Sci & Occupat Therapy, Toronto, ON M5G 1V7, Canada
[2] Toronto Rehabil Inst, Toronto, ON, Canada
[3] Univ Toronto, Dept Publ Hlth Sci, Toronto, ON M5G 1V7, Canada
关键词
caregivers; intervention; theoretical models; social support; education; stroke;
D O I
10.1016/j.pec.2007.10.020
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objective: Discuss family caregivers of stroke survivors' changing needs for education and support across the care continuum. Methods: Conceptual review. Results: Stroke is a serious, sudden onset illness requiring care across the care continuum. The focus of care, the individuals primarily responsible for providing that care, and patients' self-care abilities change across care environments. Often family members who provide support also experience changes in their caregiving role. To date, however, interventions for family caregivers have not explicitly considered their changing support needs. Our "Timing It Right" framework highlights family caregivers changing experiences and corresponding support needs across the care continuum. Five different phases of caregiver support are discussed: (1) event/diagnosis; (2) stabilization; (3) preparation; (4) implementation; (5) adaptation. The first two phases occur during acute care, the third occurs during acute care and/or in-patient rehabilitation, and the final two phases occur in the community. Conclusions: Application of this framework has the potential to benefit future intervention efforts by identifying gaps in caregiver education, training, and support. Practice implications: Recognition of family caregivers changing support needs across the care continuum will assist health care professionals to provide more timely and appropriate support. (c) 2007 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码:305 / 314
页数:10
相关论文
共 57 条
  • [1] Caregiver depression predicts early discontinuation of care for disabled elderly at home
    Arai, Y
    Sugiura, M
    Washio, M
    Miura, H
    Kudo, K
    [J]. PSYCHIATRY AND CLINICAL NEUROSCIENCES, 2001, 55 (04) : 379 - 382
  • [2] The economic value of informal caregiving
    Arno, PS
    Levine, C
    Memmott, MM
    [J]. HEALTH AFFAIRS, 1999, 18 (02) : 182 - 188
  • [3] Bakas Tamilyn, 2002, J Neurosci Nurs, V34, P242
  • [4] Bergman H, 1997, CAN MED ASSOC J, V157, P1116
  • [5] CAREGIVERS EMOTIONAL WELL-BEING AND THEIR CAPACITY TO LEARN ABOUT STROKE
    BRAITHWAITE, V
    MCGOWN, A
    [J]. JOURNAL OF ADVANCED NURSING, 1993, 18 (02) : 195 - 202
  • [6] 'You do know he's had a stroke, don't you?' Preparation for family care-giving - the neglected dimension
    Brereton, L
    Nolan, M
    [J]. JOURNAL OF CLINICAL NURSING, 2000, 9 (04) : 498 - 506
  • [7] 'Seeking': a key activity for new family carers of stroke survivors
    Brereton, L
    Nolan, M
    [J]. JOURNAL OF CLINICAL NURSING, 2002, 11 (01) : 22 - 31
  • [8] Stroke survivors' behavioral and psychologic symptoms are associated with informal caregivers' experiences of depression
    Cameron, JI
    Cheung, AM
    Streiner, DL
    Coyte, PC
    Stewart, DE
    [J]. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 2006, 87 (02): : 177 - 183
  • [9] Length of stay - How short should hospital care be?
    Clarke, A
    Rosen, R
    [J]. EUROPEAN JOURNAL OF PUBLIC HEALTH, 2001, 11 (02) : 166 - 170
  • [10] COHEN S, 1992, SER CLIN C, P109