Health-related quality-of-life scales in Parkinson's disease: Critique and recommendations

被引：228

作者：

Martinez-Martin, Pablo ^{[1
,2
,3
]}

Jeukens-Visser, Martine ^{[4
]}

Lyons, Kelly E. ^{[5
]}

Rodriguez-Blazquez, C. ^{[1
,2
]}

Selai, Caroline ^{[6
]}

Siderowf, Andrew ^{[7
]}

Welsh, Mickie ^{[8
]}

Poewe, Werner ^{[9
]}

Rascol, Oliver ^{[10
]}

Sampaio, Cristina ^{[11
]}

Stebbins, Glenn T. ^{[12
]}

Goetz, Christopher G. ^{[12
]}

Schrag, Anette ^{[13
]}

机构：

[1] Carlos III Inst Hlth, Natl Ctr Epidemiol, Av Monforte Lemos 5, Madrid 28029, Spain

[2] Carlos III Inst Hlth, CIBERNED, Madrid 28029, Spain

[3] Alzheimer Ctr Reina Sofia Fdn, Carlos III Inst Hlth, CIEN Fdn Reina Sofia Fdn, Alzheimer Dis Res Unit, Madrid, Spain

[4] Univ Amsterdam, Acad Med Ctr, Dept Rehabil, NL-1105 AZ Amsterdam, Netherlands

[5] Univ Kansas, Med Ctr, Parkinsons Dis & Movement Disorder Ctr, Kansas City, KS 66103 USA

[6] UCL, Natl Hosp Neurol & Neurosurg, Inst Neurol, Sobell Dept Motor Neurosci & Movement Disorders, London, England

[7] Univ Penn, Sch Med, Dept Neurol, Philadelphia, PA 19104 USA

[8] Univ So Calif, Keck Sch Med, Div Movement Disorders, Los Angeles, CA 90033 USA

[9] Univ Innsbruck Hosp, Dept Neurol, A-6020 Innsbruck, Austria

[10] Lab Pharmacol Med & Clin, Toulouse, France

[11] Lisbon Sch Med, Lab Clin Pharmacol & Therapeut, Lisbon, Portugal

[12] Rush Univ, Med Ctr, Dept Neurol Serv, Chicago, IL 60612 USA

[13] UCL, Royal Free Hosp, Dept Clin Neurosci, London, England

来源：

MOVEMENT DISORDERS | 2011年 / 26卷 / 13期

关键词：

Parkinson's disease; health-related quality of life; measures; assessment; patient-reported outcomes; SUBTHALAMIC NUCLEUS STIMULATION; CROSS-CULTURAL EVALUATION; DEEP-BRAIN-STIMULATION; SHORT-FORM; QUESTIONNAIRE PDQ-39; PSYCHOMETRIC CHARACTERISTICS; PSYCHOSOCIAL QUESTIONNAIRE; NONMOTOR SYMPTOMS; METRIC PROPERTIES; 15D INSTRUMENT;

D O I：

10.1002/mds.23834

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Health-related quality of life is an important patient-reported outcome used in intervention trials and for monitoring the consequences of health status on physical, mental, and social domains. Parkinson's disease is a complex disorder that strongly affects patients' quality of life. Several health-related quality of life tools have been used in Parkinson's disease. A Movement Disorder Society Task Force was commissioned to rate the psychometric quality of available health-related quality of life scales as applied to Parkinson's disease. Following the methodology adopted by previous work of the Movement Disorder Society Task Force, a review of generic and specific health-related quality of life scales applied in studies on Parkinson's disease was completed. Considering the scales from 3 perspectivesuse in Parkinson's disease, use by multiple research groups, and clinimetric propertiesa final classification as recommended, suggested, or listed was applied to each reviewed instrument. Four generic scales (EuroQoL, Nottingham Health Profile, 36-Item Short-Form Health Survey, and Sickness Impact Profile) and 5 specific scales (39-Item Parkinson's Disease Questionnaire, Parkinson's Disease Questionnaire Short Form, Parkinson's Disease Quality of Life Questionnaire, Parkinson's Impact Scale, and Scales for Outcomes in Parkinson's DiseasePsychosocial) reached the level of recommended. The 39-item Parkinson's Disease Questionnaire is the most thoroughly tested and applied questionnaire. Three other generic measures (Quality of Life Questionnaire 15D, Schedule for the Evaluation of Individual Quality of Life-Direct Weighting, and World Health Organization Quality of Life Assessment Short Version) and the specific Parkinson's Disease Quality of Life Scale are suggested. With a little additional effort in completing the stipulated requirements, they could reach the recommended level. At present there is a wide variety of health-related quality of life measures for application in the Parkinson's disease setting, and the task force does not recommend the development of a new scale. Selection of the most appropriate instrument for a particular objective requires consideration of the characteristics of each scale and the goals of the assessment. (c) 2011 Movement Disorder Society

引用

页码：2371 / 2380

页数：10

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