Characteristics of Adults With Congenital Heart Defects in the United States

被引:41
|
作者
Gurvitz, Michelle [1 ]
Dunn, Julie E. [2 ]
Bhatt, Ami [3 ]
Book, Wendy M. [4 ]
Glidewell, Jill [5 ]
Hogue, Carol [4 ]
Lin, Angela E. [6 ]
Lui, George [7 ]
McGarry, Claire [8 ]
Raskind-Hood, Cheryl [4 ]
Van Zutphen, Alissa [8 ,9 ]
Zaidi, Ali [10 ]
Jenkins, Kathy [1 ]
Riehle-Colaruso, Tiffany [5 ]
机构
[1] Boston Childrens Hosp, Dept Cardiol, 300 Longwood Ave, Boston, MA 02115 USA
[2] Massachusetts Dept Publ Hlth, Boston, MA USA
[3] Massachusetts Gen Hosp, Dept Cardiol, Boston, MA 02114 USA
[4] Emory Univ, Dept Cardiol, Atlanta, GA 30322 USA
[5] Ctr Dis Control & Prevent, Natl Ctr Birth Defects & Dev Disabil, Atlanta, GA USA
[6] MassGen Hosp Children, Med Genet, Boston, MA USA
[7] Stanford Univ, Dept Med, Sch Med, Stanford, CA 94305 USA
[8] New York State Dept Hlth, Albany, NY USA
[9] SUNY Albany, Dept Epidemiol, Sch Publ Hlth, Rensselaer, NY 12144 USA
[10] Albert Einstein Coll Med, Dept Med, Bronx, NY 10467 USA
关键词
adult congenital heart disease; epidemiology; surveillance; GENERAL-POPULATION; DISEASE PATIENTS; PREVALENCE; HEALTH; CARE; ASSOCIATION; PREDICTORS; MORTALITY; CHILDREN; PATIENT;
D O I
10.1016/j.jacc.2020.05.025
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
BACKGROUND In the United States, >1 million adults are living with congenital heart defects (CHDs), but gaps exist in understanding the health care needs of this growing population. OBJECTIVES This study assessed the demographics, comorbidities, and health care use of adults ages 20 to 64 years with CHDs. METHODS Adults with International Classification of Disease-9th Revision-Clinical Modification CHD-coded health care encounters between January 1, 2008 (January 1, 2009 for Massachusetts) and December 31, 2010 were identified from multiple data sources at 3 U.S. sites: Emory University (EU) in Atlanta, Georgia (5 counties), Massachusetts Department of Public Health (statewide), and New York State Department of Health (11 counties). Demographics, insurance type, comorbidities, and encounter data were collected. CHDs were categorized as severe or not severe, excluding cases with isolated atrial septal defect and/or patent foramen ovale. RESULTS CHD severity and comorbidities varied across sites, with up to 20% of adults having severe CHD and >50% having >= 1 additional cardiovascular comorbidity. Most adults had >= 1 outpatient encounters (80% EU, 90% Massachusetts, and 53% New York). Insurance type differed across sites, with Massachusetts having a large proportion of Medicaid (75%) and EU and New York having large proportions of private insurance (44% EU, 67% New York). Estimated proportions of adults with CHD-coded health care encounters varied greatly by location, with 1.2 (EU), 10 (Massachusetts), and 0.6 (New York) per 1,000 adults based on 2010 census data. CONCLUSIONS This was the first surveillance effort of adults with CHD-coded inpatient and outpatient health care encounters in 3 U.S. geographic locations using both administrative and clinical data sources. This information will provide a clearer understanding of health care use in this growing population. (c) 2020 the American College of Cardiology Foundation. Published by Elsevier. All rights reserved.
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收藏
页码:175 / 182
页数:8
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