Clinical Report-Maternal-Fetal Intervention and Fetal Care Centers

被引:53
作者
Ralston, Steven J.
Leuthner, Steven R.
Diekema, Douglas S.
Fallat, Mary E.
Matheny Antommaria, Armand H.
Holzman, Ian R.
Katz, Aviva L.
Leuthner, Steven R.
Ross, Lainie Friedman
Webb, Sally A.
Weise, Kathryn L.
Ralston, Steven J.
Lyerly, Anne D.
Bernstein, Judith
Brincat, Cynthia A.
Burda, Marianne L.
Childress, James F.
Farrell, Ruth M.
Frederickson, Helen L.
Kroncke, Frederick G., Jr.
Marshall, Mary Faith
Minkoff, Howard L.
Ramondetta, Lois M.
Spillman, Monique A.
Werden, Joelene J. S.
机构
关键词
CONSENT;
D O I
10.1542/peds.2011-1570
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
The past 2 decades have yielded profound advances in the fields of prenatal diagnosis and fetal intervention. Although fetal interventions are driven by a beneficence-based motivation to improve fetal and neonatal outcomes, advancement in fetal therapies raises ethical issues surrounding maternal autonomy and decision-making, concepts of innovation versus research, and organizational aspects within institutions in the development of fetal care centers. To safeguard the interests of both the pregnant woman and the fetus, the American College of Obstetricians and Gynecologists and the American Academy of Pediatrics make recommendations regarding informed consent, the role of research subject advocates and other independent advocates, the availability of support services, the multidisciplinary nature of fetal intervention teams, the oversight of centers, and the need to accumulate maternal and fetal outcome data. Pediatrics 2011;128:e473-e478
引用
收藏
页码:E473 / E478
页数:6
相关论文
共 17 条
[1]  
ACOG Committee on Ethics, 2006, Obstet Gynecol, V108, P1589
[2]  
*AM COLL OBST GYN, 2007, OBSTET GYNECOL, V110, P731
[3]  
[Anonymous], 2009, OBSTET GYNECOL, DOI DOI 10.1097/AOG.0000000000002929
[4]  
[Anonymous], 1978, The Belmont report: Ethical principles and guidelines for the protection of human subjects of research
[5]   FALSE HOPES AND BEST DATA - CONSENT TO RESEARCH AND THE THERAPEUTIC MISCONCEPTION [J].
APPELBAUM, PS ;
ROTH, LH ;
LIDZ, CW ;
BENSON, P ;
WINSLADE, W .
HASTINGS CENTER REPORT, 1987, 17 (02) :20-24
[6]   Paediatrics-based fetal care: unanswered ethical questions [J].
Brown, Stephen D. ;
Lyerly, Anne D. ;
Little, Margaret O. ;
Lantos, John D. .
ACTA PAEDIATRICA, 2008, 97 (12) :1617-1619
[7]  
HABLI M, 1999, AM J OBSTET GYNECOL, V199
[8]   Liver position and lung-to-head ratio for prediction of extracorporeal membrane oxygenation and survival in isolated left congenital diaphragmatic hernia [J].
Hedrick, Holly L. ;
Danzer, Enrico ;
Merchant, Aziz ;
Bebbington, Michael W. ;
Zhao, Huaqing ;
Flake, Alan W. ;
Johnson, Mark P. ;
Liechty, Kenneth W. ;
Howell, Lori J. ;
Wilson, R. Douglas ;
Adzick, N. Scott .
AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY, 2007, 197 (04) :422.e1-422.e4
[9]   Toward the ethical evaluation and use of maternal-fetal surgery [J].
Lyerly, AD ;
Gates, EA ;
Cefalo, RC ;
Sugarman, J .
OBSTETRICS AND GYNECOLOGY, 2001, 98 (04) :689-697
[10]  
Lyerly AD, 2009, HASTINGS CENT REP, V39, P34