Disparities in Life Course Outcomes for Transition-Aged Youth with Disabilities

被引:13
作者
Acharya, Kruti [1 ,2 ]
Meza, Regina [3 ]
Msall, Michael E. [4 ,5 ,6 ]
机构
[1] Univ Illinois, Dept Disabil & Human Dev, 1640 W Roosevelt Rd,MC 626, Chicago, IL 60608 USA
[2] Univ Illinois, Dept Pediat, Chicago, IL 60608 USA
[3] Univ Illinois, Dept Disabil & Human Dev, Illinois LEND Leadership Educ Neurodev & Related, Chicago, IL 60608 USA
[4] Univ Chicago, Pediat, Pritzker Sch Med, Chicago, IL 60637 USA
[5] Univ Chicago, Kennedy Res Ctr Intellectual & Neurodev Disabil, Pritzker Sch Med, Chicago, IL 60637 USA
[6] Comer Childrens Hosp, Sect Dev & Behav Pediat, Chicago, IL USA
来源
PEDIATRIC ANNALS | 2017年 / 46卷 / 10期
关键词
AUTISM SPECTRUM DISORDER; HEALTH-CARE NEEDS; CEREBRAL-PALSY; DOWN-SYNDROME; UNITED-STATES; PARTICIPATION; ADULTS; ADOLESCENTS; CHILDREN; EMPLOYMENT;
D O I
10.3928/19382359-20170918-01
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Close to 750,000 youth with special health care needs transition to adult health care in the United States every year; however, less than one-half receive transition-planning services. Using the "F-words" organizing framework, this article explores life course outcomes and disparities in transition-aged youth with disabilities, with a special focus on youth with autism, Down syndrome, and cerebral palsy. Despite the importance of transition, a review of the available literature revealed that (1) youth with disabilities continue to have poor outcomes in all six "F-words" domains (ie, function, family, fitness, fun, friends, and future) and (2) transition outcomes vary by race/ethnicity and disability. Professionals need to adopt a holistic framework to examine transition outcomes within a broader social-ecological context, as well as implement evidence-based transition practices to help improve postsecondary outcomes of youth with disabilities.
引用
收藏
页码:E371 / E376
页数:6
相关论文
共 30 条
[1]  
[Anonymous], WHAT IS PAR
[2]  
[Anonymous], 2014, AUTISM RES TREAT
[3]   Transition Needs of Parents of Adolescents and Emerging Adults With Special Health Care Needs and Disabilities [J].
Betz, Cecily L. ;
Nehring, Wendy M. ;
Lobo, Marie L. .
JOURNAL OF FAMILY NURSING, 2015, 21 (03) :362-412
[4]   Employment and choice-making for adults with intellectual disability, autism, and down syndrome [J].
Bush, Kelsey L. ;
Tasse, Marc J. .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2017, 65 :23-34
[5]   Disparities in Transition Planning for Youth With Autism Spectrum Disorder [J].
Cheak-Zamora, Nancy C. ;
Yang, Xuejing ;
Farmer, Janet E. ;
Clark, Mary .
PEDIATRICS, 2013, 131 (03) :447-454
[6]  
Children's Hospital of Philadelphia, CHOP CAR PATH
[7]   Transition Care for Children With Special Health Care Needs [J].
Davis, Alaina M. ;
Brown, Rebekah F. ;
Taylor, Julie Lounds ;
Epstein, Richard A. ;
McPheeters, Melissa L. .
PEDIATRICS, 2014, 134 (05) :900-908
[8]   Differences in Patterns of Participation Between Youths With Cerebral Palsy and Typically Developing Peers [J].
Engel-Yeger, Batya ;
Jarus, Tal ;
Anaby, Dana ;
Law, Mary .
AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2009, 63 (01) :96-104
[9]  
Fine A., Rethinking MCH: The life course model as an organizing framework
[10]   Participation trajectories: impact of school transitions on children and adolescents with cerebral palsy [J].
Imms, Christine ;
Adair, Brooke .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2017, 59 (02) :174-182