The social context and the need of information from patients with epilepsy: evaluating a tertiary referral service

被引：4

作者：

Freitas-Lima, Priscila ^{[1
,3
]}

Monteiro, Edna Almeida ^{[1
,3
]}

Horta Macedo, Ligia Ribeiro ^{[1
,3
]}

Funayama, Sandra Souza ^{[1
,3
]}

Santi Ferreira, Flavia Isaura ^{[2
,3
]}

Matias Junior, Ivair ^{[1
,3
]}

Angelis, Geisa ^{[1
,3
]}

Arantes Nogueira, Adriana Maria ^{[1
,3
]}

Alexandre, Veriano ^{[1
,3
]}

Velasco, Tonicarlo Rodrigues ^{[1
,3
]}

Pinheiro-Martins, Ana Paula ^{[1
,3
]}

Sakamoto, Americo Ceiki ^{[1
,3
]}

机构：

[1] Univ Sao Paulo, Fac Med Ribeirao Preto, BR-14048900 Ribeirao Preto, SP, Brazil

[2] Univ Sao Paulo, Fac Ciencias Farmaceut Ribeirao Preto, BR-14048900 Ribeirao Preto, SP, Brazil

[3] Hosp Clin, Fac Med Ribeirao Preto, BR-14048900 Ribeirao Preto, SP, Brazil

来源：

ARQUIVOS DE NEURO-PSIQUIATRIA | 2015年 / 73卷 / 04期

关键词：

epilepsy; social evaluation; information; outpatient service; QUALITY-OF-LIFE; ASSESS KNOWLEDGE; PEOPLE; CARE; SATISFACTION; WANT; QUESTIONNAIRE; ADULTS;

D O I：

10.1590/0004-282X20150007

中图分类号：

Q189 [神经科学];

学科分类号：

071006 ;

摘要：

Objective: Characterize the social profile and the need of information from patients with refractory epilepsy. Method: A semi-structured questionnaire was applied to 103 patients to investigate sociodemographic aspects, pharmacotherapy and any doubts about epilepsy. Results: Patients were highly dependent on having a free and accessible supply of antiepileptic drugs. Sixty-eight percent of the population was unemployed, and 26% confirmed receiving social security benefits due to epilepsy. Twenty-nine percent of the population reached high school. Eighty-five percent of the patients had at least one doubt about epilepsy; treatment and epilepsy aspects in general were the main topics. Conclusion: As observed in developed countries, patients with refractory epilepsy from a developing country also have high rates of unemployment and low educational levels. The results raise a concern about the need of information about epilepsy by patients and their families, urging the necessity to invest in strategies to solve this deficiency in knowledge.

引用

页码：298 / 303

页数：6

共 29 条

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