"You're naked, you're vulnerable": Sexual well-being and body image of women with lower limb lymphedema

被引：10
作者：
Winch, Caleb J. [1 ]
Sherman, Kerry A. [2 ]
Smith, Katriona M. [1 ]
Koelmeyer, Louise A. [1 ]
Mackie, Helen [1 ,3 ]
Boyages, John [1 ]
机构：
[1] Macquarie Univ, Fac Med & Hlth Sci, Dept Clin Med, Sydney, NSW, Australia
[2] Macquarie Univ, Fac Human Sci, Dept Psychol, Ctr Emot Hlth, Sydney, NSW, Australia
[3] Mt Wilga Private Hosp, Sydney, NSW, Australia
来源：
BODY IMAGE | 2016年 / 18卷
关键词：
Lymphedema; Sexuality; Chronic illness; Body image; Couples; Cancer; QUALITY-OF-LIFE; GYNECOLOGICAL CANCER; ILLNESS PERCEPTIONS; SELF-VERIFICATION; VULVAR CANCER; HEALTH; EXPERIENCES; APPEARANCE; DISSATISFACTION; SATISFACTION;
D O I：
10.1016/j.bodyim.2016.06.002
中图分类号：
B849 [应用心理学];
学科分类号：
040203 ;
摘要：
Lower-limb lymphedema is an incurable illness manifesting as visible swelling enlarging the leg(s) and/or feet, buttocks, and genitals. This study used semi-structured interviews and thematic analysis to explore sexual well-being among women with primary (congenital) lymphedema (n =11) or secondary lymphedeina associated with gynecological cancer (n =8). Five themes (subthemes) summarized women's responses, with Attractiveness and Confidence (Publicly Unattractive, Privately Unconfident, Lymphedema or Aging?) describing women's central concern. These body image-related concerns accounted for sexual well-being in association with Partner Support (Availability of Support, Languages of Support, Fears About Support) and the degree of Functional Interruptions (Lymphedema in Context, Enduring Impacts, Overcoming Interruptions). Successful Lymphedema Coping (Control, Acceptance) and self-perceived ability to fulfill a valued Sexual Role also affected sexual well-being. Few differences between women with primary versus secondary lymphedema were evident. Lymphedema clinicians should screen for sexual concerns and have referral options available. (C) 2016 Elsevier Ltd. All rights reserved.
引用
收藏
页码：123 / 134
页数：12
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